Archive | August, 2010

Which one’s right? Eight ways that patients and families can view heart disease

30 Aug

A very interesting phenomenon that I used to observe in bereaved family members during a decade working in hospice palliative care is the range of personal grieving styles, and the resulting conflicts over the “right way” to grieve.

Let’s take the example of two grown daughters whose mother has died. One daughter may be emotionally incapacitated and fragile, needing to tearfully tell the story of her mother’s illness and death over and over again to help herself deal with the loss.

But another daughter copes with her own sorrow by trying to make life as “normal” as possible - throwing herself into tasks like organizing the funeral, writing the obituary, going back to work right away, and keeping very busy.

She may feel impatient and frustrated with her emotional sister, urging her:

“Pull yourself together! Mum would not want you to be turning into such a weepy mess like this!”

The first daughter, meanwhile, might respond in horror:

“Look at you! You’ve gone back to work, you’re throwing dinner parties and making vacation plans. Don’t you even care that our mother has died?”

Each sister is convinced that the other is doing it wrong.

The same response to differing coping perspectives can happen in families when heart disease strikes one member.    (more…)

My love-hate relationship with my little black box

26 Aug

Every morning, I clip it onto my belt, or tuck it into a hip pocket.  I very carefully attach its sticky little electrode pads onto the skin just over my heart, tucking their long black wires under my clothing. Lately, I also have to hold the electrodes in place on my skin with surgical tape because they’re starting to lose their stickiness after weeks of daily wear. I turn on the black box at my waist, and adjust its two knobs to the correct power levels. I feel a prickly little buzz pulsating across my chest.

It’s called Transcutaneous Electrical Nerve Stimulation (TENS), and it involves electrical impulses called neuromodulation to treat the chest pain of Inoperable Coronary Microvascular Disease (MVD).

My TENS unit is about the size of a cell phone. You may know the much larger version of this machine if you’ve ever had physiotherapy treatments following a shoulder injury or knee surgery.  The only wounded muscles it’s working on for me now, however, are those in my heart. Emerging cardiac research is showing that, just as the TENS machine works on improving blood flow, reducing inflammation and speeding up healing for an injured shoulder or knee, it may bring the same benefits to heart patients with MVD like mine.

But I do have a love-hate relationship with my little black box.  (more…)

Is this a “revolution in health care education”?

22 Aug

After my heart attack, while I was deep in the throes of a truly crippling depression, my doctor referred me to a cognitive behavioural therapist for help. She was an extremely perky person, and used to say things to me like: “I have a great idea! Why don’t you sign up for a really interesting night school course at the college?”  I remember looking back at her and thinking: “You have absolutely no clue.”  If only I’d had the energy, I would have thrown a heavy object right at her head…

I could scarcely motivate myself to even brush my teeth every morning, so how on earth would I manage the registration process for this ‘really interesting course’, never mind actually getting myself out the door to attend night school?  That’s the kind of suggestion you might make to a perfectly healthy person, and it told me instantly that this therapist had no real comprehension of how debilitating post-heart attack depression can actually be.

That’s why I was so pleased to learn about a Canadian university’s innovative new mentorship program that - besides teaching health care students using traditional textbooks, labs and lectures – will link health mentors (adult volunteers actually experiencing chronic illness like heart disease) with teams of students from several health care faculties starting this fall. First year students with the Dalhousie University Health Mentors Program (all from the Faculty of Health Professions, Dalhousie Medical School and the Faculty of Dentistry) will meet four times a year with their assigned health mentors to ask questions like:

  • What is it like to live with heart disease?
  • What are the emotional ups and downs?
  • How do you eat well and exercise when you don’t feel well?
  • How do you manage pain, shortness of breath, fatigue and other cardiac symptoms?
  • How has your life changed?  (more…)

How soon are heart patients safely fit to fly?

18 Aug

Five months after my heart attack, I boarded a plane from the West Coast bound for Rochester, Minnesota.  Considering that I’d suffered two horrific cardiac events on another long flight just five months earlier made this trip just a wee bit terrifying for me.

Only the reality that I was headed to the world-famous Mayo Clinic  in Rochester helped propel me onboard. I told myself that if anything happened to me and my heart during this flight, the cardiologists at the Mayo Women’s Heart Clinic would know exactly what to do for me. If I survived the flight, that is . . .   (more…)

Having a heart attack? Call 911 – and pack your Tetris game

14 Aug

I confess that there was a time when I was ever so slightly addicted to playing the computer puzzle game Tetris.  Like many parents, I discovered it through my children during their early teen years.  Back then, I was known to occasionally “borrow” their little Gameboy and then stay up until 2 a.m. playing “just one more game” while trying to beat my previous best score. But UK researchers tell us that time-wasters like Tetris or other so-called “distractor tasks” might very well help us minimize the psychological effects of Post Traumatic Stress Disorder (PTSD).

Heart attack survivors have a disturbingly high incidence of undiagnosed PTSD.  Research reported in the British Journal of Health Psychology confirmed, for example, that as many as 16% of cardiac survivors actually meet clinical criteria for acute PTSD, and a further 18% report moderate to severe PTSD symptoms.

So if distractor tasks such as playing an obsessively distracting computer puzzle game like Tetris can successfully help to treat PTSD in those affected by combat exposure, could playing Tetris also help heart attack survivors?   (more…)

When the ‘wrong’ family member gets heart disease

10 Aug

I’ve come to learn that a common reaction to a heart attack is others’ utter shock that this could happen to “YOU, OF ALL PEOPLE!”  Women in particular report reactions like this because, generally speaking, we’re used to being the ones who take care of others, and to being the strong glue that holds our family life and relationships together.

How dare we get sick?

Dr. Wayne Sotile, in his very useful book Heart Illness and Intimacy: How Caring Relationships Aid Recovery, talks about the “family scramble” that can happen when somebody in that family is diagnosed with heart disease.  And few things can heighten the family scramble, he claims, like the “wrong” family member getting sick.  (more…)

Follow

Get every new post delivered to your Inbox.

Join 743 other followers