Archive | June, 2012

Avoiding avoidable cardiac care

28 Jun

by Carolyn Thomas  @HeartSisters

I’ve written here previously about the difference between people who are health-seekers as opposed to those who tend to be disease-seekers.  I  would lump myself into the former category;  what I’m looking for is quality medical care that’s appropriate and available when I need it. But as a heart attack survivor, I also want to avoid health care that is not 100% absolutely necessary, whether that’s a drug or a clinical procedure or a diagnostic test.

Drugs, procedures and tests that are not necessary make up what doctors call “avoidable care”. It’s a growing issue that the medical profession has been aware of for decades. But many physicians appear oddly unreceptive to hearing or talking about avoidable care, apparently even among their doctor buddies.    Continue reading 

“Welcome to Holland!”

24 Jun

by Carolyn Thomas

Back in 1974, a writer named Emily Perl Kingsley had a baby boy she named Jason who was diagnosed with Down Syndrome.  Years later, the writer for Sesame Street wrote an essay called Welcome to Holland about what it’s like living with a child with a disability. This essay has become a classic, and it may help those of us who face any life-altering reality we didn’t see coming – like a catastrophic cardiac diagnosis. 

Here’s what Emily wrote:     Continue reading 

Where’s the “survivorship” model for heart patients?

20 Jun

by Carolyn Thomas

“There may be times when the joy you feel about survival far outweighs any anxieties you may have.

“Then, there will be times when your fears and uncertainties seem to take over your life, and you wonder if you will ever feel normal again.”

This sounds so familiar to any of us who have survived a catastrophic  cardiac event, doesn’t it?

But these words were not written about heart patients – they’re for cancer survivors.  Which made me wonder about this thing known as  “survivorship” - a popular concept in oncology that defines a cancer survivor “from the time of diagnosis and for the balance of life.” But where, I ask you, is the concept of “survivorship” for heart patients?  And why haven’t I found it yet? Continue reading 

Reliable health info from the ‘medically unqualified’?

16 Jun

by Carolyn Thomas

“Medical websites created by medically unqualified individuals (i.e. persons who are not physicians) are unreliable and should, de facto, be considered medically unsound. Don’t you agree?”

That’s a question that the late great Dr. Tom Ferguson said he was often  asked during his public talks and workshops. The pioneering physician, author and researcher studied and wrote about the empowered medical consumer starting in the 1970s – a time when most people had never even heard of such an animal.

So as one of those “medically unqualified individuals” who in 2009 launched this site about women’s heart disease, I was particularly interested in Dr. Tom’s answer to that question. Here’s what he wrote:*  Continue reading 

Jenni’s wise advice for your next hospital stay

12 Jun

My lovely friend Jenni gave all of us all quite a scare last month when she became very ill, was taken to hospital by ambulance, and then needed to undergo an emergency appendectomy. She’s safe and sound at home now, thank goodness, and recovering nicely. She recently decided to e-mail us this update on her condition. But what made me laugh out loud was her list of three important warnings based on what she learned during her hospital experience. With Jenni’s permission, I’m sharing them here for the benefit of any women who may be heading into hospital soon. Take notes, ladies . . .    Continue reading 

A heart patient’s positive attitude: a “crazy, crazy idea”?

8 Jun

by Carolyn Thomas

I blame genetics – and three decades spent working in public relations – for generally making me one of those smiley, glass-half-full, annoyingly über-positive personalities much of the time. Not even horrific symptoms during my heart attack could alter the weak happy face that seemed freakishly pasted on throughout that ordeal.

It’s as if I were channeling Elizabeth Banks‘ classic character in her short yet brilliant film Just A Little Heart Attack – in which she attempts to smile brightly despite textbook cardiac symptoms, and even taunts her concerned family:

“Do I look like the kind of person who’s having a HEART ATTACK?”

Don’t make a fuss. Chin up. Don’t worry, be happy. Just get on with it. I’m fine, just fine.

Trouble is: people like me who sport a perma-smiley face may not be “fine”. Not at all. And I now believe that feeling obliged to pretend we are what we’re not can be both physically and psychologically damaging.   Continue reading 

Follow

Get every new post delivered to your Inbox.

Join 1,959 other followers