Archive | August, 2012

Why doctors shouldn’t call it the “waiting” room

31 Aug

by Carolyn Thomas  @HeartSisters

At least once a year, my family heads out to the world-famous Butchart Gardens, about a half hour drive from our home here in Victoria. We spend a magical Saturday evening enjoying the summer gardens, a picnic supper on the lawn, live entertainment and especially the eye-popping summer fireworks extravaganza at dusk.  We are joined by approximately a zillion other visitors from around the globe, and the minute those last fireworks have fizzled, the zillions stand up and shuffle en masse to the vast parking lot to exit.

A little secret that our family has learned over the years, however, has saved us a lot of late night aggravation trying to get out of that tour bus-clogged  traffic jam – and it also confirms social scientists’ theory that Occupied Waiting Time feels far shorter than Unoccupied Waiting Time - a profound lesson for those of us who spend way too much time cooling our heels in doctors’ waiting rooms.  Continue reading 

How women can tell if they’re headed for a heart attack

27 Aug

by Carolyn Thomas  @HeartSisters

When nurse-researcher Dr. Jean McSweeney from the University of Arkansas for Medical Sciences interviewed hundreds of heart attack survivors, she discovered something surprising: 95 percent of the women she interviewed actually suspected something was very wrong in the months leading up to their attack.*

But even these early warning prodromal symptoms didn’t necessarily send women rushing to the doctor, as reported in Dr. McSweeney’s study published in the medical journal, Circulation.** And for those women who did seek help early, doctors often failed to identify their problems as being heart-related.

If you experience the warning symptoms listed below – especially if the feelings are new, worse, unexplained, or you have other heart disease risk factors – call your doctor.  And if they’re very severe, or you have signs of an impending heart attack, call 911Continue reading 

ICD warning: defective defibrillator leads recalled

23 Aug

by Carolyn Thomas

It’s nail-biting time for hundreds of thousands of patients worldwide who have had a Riata defibrillator implanted next to their hearts (79,000 in the U.S., 5,300 in Canada, 4,000 in Australia – just for starters). The recent news about the Riata recall might feel like being told you now have a ticking time bomb inside your chest. Trouble is, you just don’t know if that time bomb will start firing when it shouldn’t, or fail to fire in time to resuscitate your heart when it should.

And worse, neither does your doctor.

In December 2011, following reports of premature erosion of the insulation around the electrical conductor lead wires in these devices, the FDA ordered an urgent Class 1 recall (the most serious type of recall) of all Riata and Riata ST Silicone Endocardial Defibrillation Leads manufactured by St. Jude Medical Inc.  Here is the FDA recommendation to all patients with these Riata devices implanted in their bodies:*    Continue reading 

How hot weather hurts our hearts

19 Aug

by Carolyn Thomas

Welcome to Lotus Land, where, alas, it’s been stinkin’ hot lately. This is tragically unfair, I think. I moved here to Canada’s beautiful West Coast decades ago in order to escape the kind of soul-sucking sauna that passes for summer back east.

And because uncomfortably hot weather is so deliciously rare here, few of us even have air conditioning, although I do have an electric fan that I’ve started carrying around the apartment with me from room to room this past week.

Since surviving a heart attack, I’ve learned a whole new reason to hate the heat.  I walk around feeling sick, clutching my little fan, a damp cloth pressed to the back of my neck, hot and cranky and looking like I’ve been hit by a very large bus. Here’s why heart patients can feel so much worse when those temperatures soar:   Continue reading 

Misdiagnosed: women’s coronary microvascular and spasm pain

15 Aug

by Carolyn Thomas

Findings from the federally funded Women’s Ischemia Syndrome Evaluation (WISE) study — a landmark investigation into ischemic heart disease (meaning reduced blood supply to the heart muscle) – are helping us to understand that, as the Harvard Women’s Health Watch puts it: heart disease – like cancer – is not one, but several disorders.

While I was at Mayo Clinic shortly after my heart attack, I also learned that at least two of these disorders are far more commonly seen in women than in men’s “Hollywood heart attacks”. These two heart conditions involve the smallest of the heart’s blood vessels in coronary microvascular disease (MVD) as well as non-obstructive issues like coronary artery spasm (CAS). Continue reading 

Finding the funny when the diagnosis isn’t

11 Aug
Note from Carolyn: “I’m taking the weekend off as we celebrate with family and friends the wedding of my favourite daughter, Larissa.  So meanwhile, I’ve obtained permission to republish this guest post by Casey Quinlan for you. Enjoy!”

It’s not easy hearing your name and [insert dread diagnosis here]. I know this only too well after having to find the funny in my own journey through cancer. Cancer is, however, most often a diagnosis that you fight to a defined end. What’s it like to find the funny in a chronic condition?

I have a number of friends who are battling MS, one of whom, Amy Gurowitz, shared a link on Facebook the other day to Jim Sweeney’s online empire of improv humor and chronic disease. Jim’s MS journey started with vision problems in 1985, he was officially diagnosed in 1990, and has been dealing with the disease – finding the funny most of the time – ever since. Continue reading 

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