Cardiac research

Much of medical research has focused on the ‘bikini approach‘ to women’s health: breasts and reproductive organs. And the University of Toronto’s Dr. Wendy Tsang’s studies on heart research has found that, although women comprise 53% of patients with cardiovascular disease, in clinical trials they represented only:

  • 29% of subjects with coronary artery disease
  • 25% with congestive heart disease
  • 34% with cardiac arrhythmias

We need to change that. Women MUST get involved in cardiac research if we are to see improvements in diagnostics and treatment of our heart disease. As Dr. Niece Goldberg writes:

“When it comes to heart disease, women are not just small men.”

Please consider participating in heart research. For example:

♥  Are you over 50, work more than 35 hours a week, and willing to participate in cardiac research called Aging Workers with Heart Disease? Please contact Dr. Victoria Dickson at NYU:  vdickson@nyu.edu

   Or are you a heart attack survivor (male or female) interested in participating in an online survey about why people wait so long even in mid-heart attack before seeking medical help? Find out more about this Yale University study.

Or are you a survivor of Spontaneous Coronary Artery Dissection? Find out more about participating in two new Mayo Clinic studies on SCAD.

Or are you a male or female adult who has survived a heart attack within the past six months, or who has undergone or is scheduled for CABG (bypass surgery) and who is now considered at high risk for future cardiac events? Find out more about this clinical trial recruiting participants for studies on an early detection implantable device being done at 50 different hospital sites throughout the U.S. for AngelMed.

Or are you a female heart patient living in Greater Toronto who is eligible to participate in a home-based cardiac rehabilitation program? Find out more about this University Health Network research. Search Study # NCT01019135

Or are you a woman between the ages of 45 to 75 years of age living in Oregon who has been diagnosed with Coronary Microvascular Disease? Both healthy women (the control group) as well as those with MVD are being recruited by Oregon Health and Science University. Find out more. Search Study # NCT00663520

Or are you a woman over the age of 21 living near Los Angeles who has been diagnosed with Coronary Microvascular Disease? Find out more about participating in this Cedars-Sinai Women’s Heart Center study. Search study # NCT00573027

Or are you the parent of a child between the ages of 5-8 who has a Congenital Heart Defect? Find out more about participating in a Walden University online study called “Late Effects of Congenital Heart Defects on Parent Ratings of Executive Functioning Skills in School Age Children”.

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See also:  Are Women Being Left Behind in Cardiac Research? and Cardiac Research: Where Did All The Women Go?

4 Responses to “Cardiac research”

  1. Denise Barham June 24, 2013 at 4:25 pm #

    I believe women are left out of heart disease studies, etc. because: 1) Most heart doctors and research specialists are men and 2) Women are ignored when we finally do see a cardiologist or go to the ER.

    I know I have been (in both cases)! I think I’ll faint when, and if, I’m finally diagnosed! I know I have unstable angina, and am on meds but everyone keeps saying I’m too young, etc. (I’m 52)! Very frustrating.

    Like

    • Carolyn Thomas June 24, 2013 at 6:56 pm #

      Hi Denise – Frustrating indeed! Women are under-represented in cardiac research for so many reasons. For example, we are asked to participate less often than males are. And although women do volunteer to participate in hormone or breast cancer research trials, we are not volunteering to participate in cardiac research. It’s not just men who don’t think of heart disease as a women’s problem!

      Like

  2. Kathleen August 20, 2012 at 1:21 pm #

    Carolyn,
    I want to be part of a study on apical hypertrophic cardiomyopathy, but so far haven’t found one. In fact, as of now I have found only one published study that involved sizable numbers (about 100) and that is cited in journal articles, along with single case descriptions and a very few studies that involved much lower numbers (about 11-20). One letter in reply to an article pointed out problems with that article’s analysis and conclusions drawn from existing studies, and was a plea for more published information, even case studies, as there is very little data. Let’s call it Rare Condition Research Syndrome.

    Like

    • Carolyn Thomas August 20, 2012 at 5:25 pm #

      Hi Kathleen – that’s the trouble with rare diseases: there simply aren’t lots of people to either include in studies, or to benefit from studies’ conclusions (relative to non-rare disease) Have you checked out the NIH Office of Rare Disease Resources yet?

      Like

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