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Design a beautiful day today

19 May

by Carolyn Thomas  @HeartSisters

Martin SeligmanRegular readers will already know that I’m a fan of Dr. Martin Seligman’s work. He’s the author of Learned Optimism and a number of other books I’ve found useful, especially for those of us who have been body-slammed by a life-altering medical diagnosis and are trying to somehow salvage some shred of positive thinking out of the whole mess. 

Oh, sure. You may already be thinking: it’s so easy for healthy people to feel positive. But what about when you’re a patient living with debilitating symptoms, hospital admissions, fistfuls of meds, scary side effects, diagnostic tests, medical appointments, hospital re-admissions, and distressing procedures? Don’t you need to be healthy to be truly happy? Continue reading 

News flash: care improves when doctors consider the whole person

15 May

by Carolyn Thomas  @HeartSisters

When I worked in hospice palliative care, I remember being gobsmacked while reading in a medical journal one day about Dr. Harvey Chochinov’s research on Dignity Therapy out of the Manitoba Palliative Care Research Unit. His studies determined that – wait for it! – patients feel better when their doctors listen to them. This of course sounds like a no-brainer until it hits you upside the head that, apparently, not all doctors know this fact to be true.

Is it actually possible, I wondered at the time, that doctors thumbing through journals madly take notes when they discover a surprisingly shocking news flash like this?

Recently, I ran across yet another fine example of the bleedin’ obvious that makes me crazy-go-nuts, as my Ukrainian relatives would say. Continue reading 

When heart patients meet the Black Swan

25 Apr

by Carolyn Thomas  @HeartSisters

blackswan_johngouldI have a little ritual as soon as I board the ferry from my island home for the one hour and 40 minute sailing  over to the mainland: I make a stop at the magazine rack of the B.C. Ferries gift shop. It has something to do with both the beautifully tactile feel of a new magazine and its clear association in my brain with almost every ferry ride I’ve ever taken through our west coast Gulf Islands.

That, and a pack of Mentos . . .

During last week’s sailing to Vancouver, we had barely settled into our front row seats in the forward lounge with the Mentos and a copy of Psychology Today in hand before I was riveted by editor Kaja Perina‘s third page commentary. She writes about something called the Black Swan, a reference to a 17th century philosophical thought experiment.   Continue reading 

When doctors use words that hurt

21 Apr

by Carolyn Thomas  @HeartSisters

Consider hearing the scary diagnosis of “heart failure” tripping lightly from your doctor’s lips as if it were no big deal. Can there be anything more terrifying and demoralizing than hearing that your heart is failing”And the words don’t even  accurately reflect this condition, which actually means that your heart is not pumping blood as well as it should. 

So why did doctors come up with this heart failure name, and what on earth were they thinking when they decided it would be a good idea to actually say these words out loud to Real Live Patients? And is there a better piece of medical jargon they could use instead?   Continue reading 

‘Healthy Privilege’ – when you just can’t imagine being sick

13 Apr

by Carolyn Thomas   ♥  @HeartSisters

Have you had the experience of knowing something intuitively, but without realizing that the thing you know already has a name?  For example, have you ever found yourself limping along on the losing end of an argument, yet  only much later (when it was far too late!) you suddenly thought of just the perfectly witty retort that you should have come up with? 

There’s a name for that. The French call this l’esprit d’escalier’, literally “the spirit of the staircase”. You’re welcome.

Similarly, I’ve been writing for some time about my niggling frustration over something else that I didn’t even realize had an actual name.  Continue reading 

Patient engagement? How about doctor engagement?

9 Apr

by Carolyn Thomas  @HeartSisters

It’s a stressful time to be a patient these days, what with expectations running high that we should be both empowered and engaged while self-tracking every trackable health indicator possible – and of course retaining an all-important positive mental attitude – in order to change health care forever. 

Whew. I had to go have a wee lie-down just thinking about how big that responsibility may seem on days when we patients are feeling, yes, sick -  as an annoyingly significant number of patients living with a chronic and progressive illness tend to feel on any given day. That’s why we’re called “patients”.   Continue reading 

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