Tag Archives: Long QT syndrome

Coping with your partner’s ICD and heart disease

1 Apr

by Carolyn Thomas

I could make out the rounded corners of the implanted device stretching through the thin white skin of Ann’s chest. I was shocked to see such a young, healthy-looking woman among our Heart To Heart survivors’ support group that night (we were vastly outnumbered by old men and their wives).  Ann (not her real name) was just 24 years old; her young sister had recently died of sudden cardiac arrest due to a terrifying heart condition called Long QT Syndrome – a heart arrhythmia usually affecting otherwise healthy teenagers and young adults – whose first symptom is sudden loss of consciousness and, in far too many cases, death.

Because there is often a family connection, all of the surviving siblings in Ann’s family had to be tested to see if they too shared this deadly diagnosis. Her brother was fine, but Ann tested positive for Long QT, and so was immediately implanted with a life-saving cardiac device called an ICDContinue reading

Do you know the difference between a pacemaker and an implantable defibrillator?

16 Jul

by Carolyn Thomas  @HeartSisters

Before surviving a heart attack, I knew virtually nothing about pacemakers (they were just something that old people have to get, right?) and absolutely nothing about the cardiac device called implantable cardioverter defibrillators, or ICDs. 

In fact, the first time I laid eyes on a person with an ICD was at my 7-week Heart To Heart cardiac support group after I was discharged from hospital. 

One of the people in my group was a lovely, athletic 24-year old woman who had been diagnosed with a rare and serious heart arrhythmia called Long QT Syndrome.* Her sister had recently died suddenly due to the same condition.

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