Category: Living with heart disease

posts here focus on the “new normal” you’ll discover once you get home from hospital and the reality starts to sink in

First the big change, then the big transition

~ Carolyn Thomas ~ 7 Comments

3quotes-Change-is-external--by Carolyn Thomas  ♥  @HeartSisters  

I can’t even remember reading the book when I bought it, hot off the press, back in 1991. It was during the busy pre-Kindle heyday of my career in corporate public relations. In those days, I traveled a lot for work, so on any given day I carried a business book or two in my briefcase to read on the plane. (Remember briefcases? Do people still carry briefcases?)

This particular book is called Managing Transitions by William Bridges, the “preeminent authority on change and managing change”. 

While sorting out old books recently to donate to charity, I cracked open this book to the section called How to Deal with Non-Stop Change. Bill Bridges was writing specifically about dealing with change in the workplace, but his message also made a lot of sense to me as a patient who has seen plenty of changes in my life due to a misdiagnosed heart attack  in 2008. The reality is that there is no workplace change – layoff, getting fired, restructuring, corporate merger, you name it – that could possibly compare to the profoundly significant changes that so many of us go through when we are diagnosed with a serious medical condition.   .       . Continue reading “First the big change, then the big transition” →

Dear Carolyn: “Breaking up is hard to do”

~ Carolyn Thomas ~ 4 Comments

by Carolyn Thomas   ♥   @HeartSisters 

Breaking up is hard to do. That’s how my blog reader Tommie O’Sullivan described to me the sad news that she lost first one, and then a second trusted cardiologist. It’s nothing personal. Important family reasons. Retirement. She understands these things. But still. . .

As part of my occasional and ongoing “Dear Carolyn” series of guest posts written by women who have learned firsthand what becoming a heart patient is all about, I’m happy to share this, with her permission. Tommie’s words reminded me that, so far, I’ve been lucky in never experiencing the loss of a favourite physician. I suspect that – in this age of increasingly empowered patients, critical doctor reviews online, and second opinions from Dr. Google – her sentiments are what every physician longs to hear one day from their patients: “I will really miss you!”  Continue reading “Dear Carolyn: “Breaking up is hard to do”” →

When patients feel like hostages

~ Carolyn Thomas ~ 19 Comments

by Carolyn Thomas  ♥  @HeartSisters  ♥  July 22, 2018

When his 6-year old son became very ill and was hospitalized, Dan Beckham observed how his own behaviour in the hospital began to dramatically change compared to his real life. Although he would readily send a restaurant meal back if it weren’t properly cooked, now when his son received poor care (e.g. a healthcare professional who did not wash his hands), Dan hesitated to be assertive “for fear of alienating the physicians and nurses whose goodwill he needed to maintain.” Here’s how he explained this:

“I felt dependent and powerless, as if my son was a hostage to the care he received and the system that delivered it. It was as though I was compelled to negotiate for his safe release from potential harm.”

Such a reaction is an example of what’s known as Hostage Bargaining Syndrome (HBS), as described in the medical journal Mayo Clinic Proceedings.(1)  Continue reading “When patients feel like hostages” →

Six ways NOT to motivate patients to change

~ Carolyn Thomas ~ 16 Comments

by Carolyn Thomas  ♥  @HeartSisters 

In classic scientific understatement, U.K. researchers Drs. Michael Kelly and Mary Barker observed that “most efforts to change health behaviours have had limited success.”(1)

No kidding. Right now, even as you read this, academic researchers all over the globe are applying for (and getting) grant funding to embark on yet another new study examining smokers who don’t quit, couch potatoes who don’t get off the couch, or overweight people who don’t lose weight. I can’t be 100% certain, of course, but I’m betting my next squirt of nitro spray that these studies will no doubt conclude that, yes indeed, those people do need to change their behaviour, and “further study is required”. Continue reading “Six ways NOT to motivate patients to change” →