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Is SCAD rare? Or just rarely diagnosed correctly?

10 Feb

by Carolyn Thomas   @HeartSisters    February 10, 2019

I was happy to see Katherine Leon featured in The New York Times recently. Katherine, like me, is a graduate of the WomenHeart Science & Leadership patient advocacy training at Mayo Clinic. She told the Times of undergoing emergency coronary bypass surgery at age 38, several days after her severe cardiac symptoms had been dismissed by doctors who told her, “There’s nothing wrong with you.” She isn’t alone. Many, many studies have shown that female heart patients are significantly more likely to be under-diagnosed – and worse, often under-treated even when appropriately diagnosed – compared to our male counterparts. This is especially true for women with her condition (Spontaneous Coronary Artery Dissection, or SCAD) that was once considered to be a rare disease. Dr. Sharonne Hayes is also featured in the NYT piece; she’s a respected Mayo Clinic cardiologist, longtime SCAD researcher and founder of the Mayo Women’s Heart Clinic. (You can read their story here).

But almost as soon as the Times piece was published online, I was gobsmacked to see some of the reader comments coming in – especially comments from people like these:   Continue reading

Fewer lights/sirens when a woman heart patient is in the ambulance

13 Jan

by Carolyn Thomas   @HeartSisters    January 13, 2019

emsI sometimes think that, during the almost 10 years I’ve been writing about women’s heart disease research, diagnostics and treatment, I’ve heard it all when it comes to women being under-diagnosed and under-treated (yes, sometimes under-treated even when appropriately diagnosed!)  I thought I was unshockable by now. But a study published last month in the journal, Women’s Health Issues (WHI) was indeed a shocker.    .
Continue reading

The Grinch’s Guide to Women’s Heart Attacks (with apologies to Dr. Seuss)

23 Dec

by Carolyn Thomas    @HeartSisters  December 23, 2018

(with apologies to Dr. Seuss)

.

Chest pain can make women WORRY a lot,

Yet when women seek help, some are told they should not.

“Anxiety, maybe – you’re stressed by the season!

“Your tests all look fine!” No one quite knows the reason.

 

It could be that these tests weren’t researched on them.

(And, really – aren’t women small versions of men?)

It could be that Grinch docs think women are lying

Or making up symptoms, without even trying.

Continue reading

Skin in the game: taking women’s cardiac misdiagnosis seriously

16 Dec

by Carolyn Thomas     @HeartSisters    December 16, 2018

Our physicians are highly trained experts in providing medical care, but it’s their patients who have “skin in the game”This odd phrase is believed to have originated in the financial sector to describe senior investment advisors who demonstrate their confidence in a company by putting their own money (their own “skin”) into the company in order to build investor confidence. So if stock prices fall, they stand to lose – just like their clients will. Advisors who choose not to do this may be every bit as smart, but they have no skin in the game.  Continue reading

Dr. Google in the E.R.

25 Nov

 by Carolyn Thomas  @HeartSisters    November 25, 2018

Once upon a time, whenever the good citizens of Belgium experienced puzzling symptoms (let’s say, “twitching eyelids”), they would turn to Dr. Google to find out what might be causing the symptoms. But the Belgian government, concerned about false and scary health information online, came up with a public awareness campaign that warned: “Don’t Google It. Check a reliable source!” This also included a referral link to a government health site that could help to correctly answer questions about twitching eyelids and several other health issues.

This campaign was what patient activist Dave de Bronkart (aka ePatient Dave) bluntly described at the time as spectacularly wrong, insulting, misinformed and wrong-headed. Continue reading