Who is in charge of you?

by Carolyn Thomas   @HeartSisters     July 21, 2019

And you thought YOU had a lot of medical appointments. . .

Writing on her blog, Sick With Optimism, a Canadian patient regularly sees three nephrologists from three different clinics, two hematologists, two rheumatologists, a cardiologist, her GP – “as well as so many interns, inpatient doctors and fellows, I can’t even count!”

I was profoundly moved by her story about how one of her many recent doctors’ appointments evolved. . .

Continue reading “Who is in charge of you?”

“A Typical Heart” – this documentary film pulls no punches!

by Carolyn Thomas   @HeartSisters     July 15 , 2019

Just launched on July 15th, the important documentary film called A Typical Heart is a triumph. It’s about the deadly disparity in diagnosis, treatment and outcomes among male and female heart patients. It packs an incredible load of unforgettable factoids and quotable quotes into just 22 short minutes.     . Continue reading ““A Typical Heart” – this documentary film pulls no punches!”

The questions you don’t ask your doctor

by Carolyn Thomas   @HeartSisters     July 14 , 2019

Let’s say you’re a woman recently diagnosed with heart disease who wants to know if it’s “normal” to feel crushing fatigue every time you take a shower.  Or you’re a woman living with rheumatoid disease who needs advice on which shoes are best for people who suffer joint pain like yours. Or you’re a woman diagnosed with breast cancer who is trying to make sense of the new emotional extremes you’re struggling with.

Who you gonna call? Continue reading “The questions you don’t ask your doctor”

Denial? Or doctorly deference?

by Carolyn Thomas     @HeartSisters  ♥   June 2, 2019

Last week, the British Medical Journal (BMJ) ran a compelling opinion piece from Boston physician Dr. Abraar Karan on why some patients just don’t seem to understand what their doctors are telling them.  Here’s how he opens his essay:

Why am I here?’ Mrs. S looked up at me for the first time since I had entered the room and begun speaking to her. I had spent the past five minutes talking about the need for her to start new medications for her heart failure. She had nodded along for most of the conversation, but I wondered if she had heard, or more importantly understood, anything I had been saying. She had had three admissions for worsening heart failure in the past few months. And yet she looked at me and said, ‘Do I have heart problems? No one ever told me!'”   . Continue reading “Denial? Or doctorly deference?”

Women’s heart health: why it’s NOT a zero sum game

by Carolyn Thomas  @HeartSisters  April 7, 2019

In the game of poker, zero sum game theory suggests that the sum of the amounts won by some players equals the combined losses of the others. So if one player wins big, then other players must lose big.

It struck me recently that it’s possible our healthcare system functions as if it were a zero sum game, too.
Continue reading “Women’s heart health: why it’s NOT a zero sum game”

MDs often tell women to lose weight rather than address cardiac risk factors

by Carolyn Thomas     @HeartSisters    March 31, 2019

This editorial, What Women (and Clinicians) Don’t Know Hurts Them, originally appeared in the Journal of the American College of Cardiology. As a woman with heart disease, I wanted to immediately read it to find out what might be hurting me.

But as is common practice in most medical journals, this editorial was behind a paywall, so it was not available for heart patients like me, or anybody else who wasn’t a subscriber to the journal.

I could pay a fee of $35 for the privilege of reading this one article, but the reality is that I can’t afford to pay for articles that aren’t being published in what’s known as an open access journal.* Continue reading “MDs often tell women to lose weight rather than address cardiac risk factors”