Exhaustion: the ‘leaky emotion’ of chronic illness

by Carolyn Thomas    @HeartSisters

Like most of you, I’ve experienced my fair share of garden variety pain over the years (caused, in my case, by things like a ruptured appendix, broken bones, knee surgery, or popping out two babies the old-fashioned way).

But none of those even came close to the chronic pain of refractory angina caused by my current diagnosis of inoperable coronary microvascular disease (MVD).  The chest pain caused by this disorder of the heart’s smallest blood vessels is episodic, intense, frightening and resembles what my “widow maker” heart attack symptoms felt like in 2008. Except this kind of pain happens almost every day.  It’s generally well-managed most days by meds (including my trusty nitro spray) and the non-drug, non-invasive TENS therapy recommended by my cardiologist as well as my pain specialist at our Regional Pain Clinic.  But sometimes, it’s alarming enough that I clutch my chest and wonder:

“Is this something? Is it nothing? Should I call 911? Is today the day I’m having another heart attack?”

As you already know if you live with chronic pain like this, pain can literally change your personality. If it’s chest pain, it can also make you feel anxious and worried in a way that having pain from knee surgery never can. No wonder pain is so utterly exhausting!
Continue reading “Exhaustion: the ‘leaky emotion’ of chronic illness”

Words matter when we describe our heart attack symptoms

by Carolyn Thomas     @HeartSisters

When I interviewed Dr. Catherine Kreatsoulas* about the research paper she presented last month in Vancouver at the Canadian Cardiovascular Congress(1), her previous heart studies caught my attention, too.

I was surprised by her explanation from earlier research on how some women describe their chest pain during a heart attack (2), as she told me:  .   .
Continue reading “Words matter when we describe our heart attack symptoms”

Brain freeze, heart disease and pain self-management

by Carolyn Thomas  @HeartSisters

Part 2 of a 3-part series about pain

Consider the familiar pain we call brain freeze.

That’s the universal experience of feeling a sharp pain in the forehead right between your eyes after you eat or drink something that’s icy cold. But when you feel this pain, it simply means that your hypersensitive nervous system is making a mistake.
Continue reading “Brain freeze, heart disease and pain self-management”

The freakish nature of cardiac pain

by Carolyn Thomas  ♥  @HeartSisters

Part 1 of a 3-part series about pain

I was thinking about the freakish nature of pain the other day. I think about pain quite a bit, actually, given the frequency with which I now experience the ongoing symptoms of coronary microvascular disease. But when the first alarming warning signs of a heart attack struck out of the blue while I was out for a brisk pre-breakfast walk, the reality was not at all what I would have ever imagined a heart attack to feel like. And because I was clueless, I believed the Emergency Department physician who’d misdiagnosed me with acid reflux and sent me home that same morning.  Continue reading “The freakish nature of cardiac pain”