by Carolyn Thomas    ♥   @HeartSisters

The late Dr. Jessie Gruman was a beloved pioneering activist in the person-centered care movement, the founder of the Center for Advancing Health (CFAH) and the author of the book AfterShock: What to Do When the Doctor Gives You — Or Someone You Love — A Devastating Diagnosis.  She once defined the concept of patient engagement as “the actions people take to support their health, and to benefit from their health care” – a simple yet accurate definition. In 2014, I was interviewed for a CFAH report on patient engagement – a document I later described as “interesting, illuminating and frustrating”  in my follow-up essay called Patient Engagement (As Described by 31 Non-Patients).  I learned back then that how patients view patient engagement and how non-patients view it can be miles apart. And a new paper published this month may help to explain how this gap can affect patients themselves. Continue reading “Patient partners share what can go wrong with patient engagement” →