Do you fear change? Then don’t have a heart attack

by Carolyn Thomas   @HeartSisters

For the freshly-diagnosed heart patient, the immediate and sudden change from “being well” to “recovering” cuts directly to the core of self-concept and self-esteem, according to Dr. Wayne Sotile. He offers a surprisingly familiar list of seven sudden changes commonly observed after a cardiac event. When thinking back on the new reality of my own early post-heart attack days, I was able to tick off his list, point by point. If this had been a midterm exam, in fact, I’d score a perfect 7/7.  On his list of seven stressors that newbies often face, how many ring true for you, too? Continue reading “Do you fear change? Then don’t have a heart attack”

Living with heart disease – and your whole family

by Carolyn Thomas    @HeartSisters

For more than 30 years, Dr. Wayne Sotile was the director of psychological services for Wake Forest University’s Cardiac Rehabilitation program. Which is to say that he’s spent a lot of time with heart patients and their families. In 2008, while recuperating from my own heart attack, I discovered his must-read book called Thriving With Heart Disease. That title, by the way, has always bugged my Alaskan friend Dr. Stephen Parker (a cardiac psychologist and himself a heart attack survivor) who once made this comment about the book’s title:

“Just as soon as I can gather myself together, I am planning on writing a book called ‘Thriving After I Lost All My Body Parts’…”

Despite that small quibble about the title, Dr. Sotile is a terrific writer who nails it when it comes to guiding those who are freshly-diagnosed with a chronic and progressive condition like heart disease. Continue reading “Living with heart disease – and your whole family”

The day I made peace with an errant organ

by Carolyn Thomas    ♥  @HeartSisters

Here’s my theory: few health crises in life are as traumatic as surviving a cardiac event. I developed this theory while I was busy having my own heart attack in the spring of 2008.

For starters, cardiac symptoms often come out of the blue (in fact, almost two-thirds of women who die of coronary heart disease have no previous symptoms.(1)  Having a heart attack can feel so unimaginably terrifying that almost all of us try desperately to dismiss or deny cardiac symptoms. And according to a report published in Global Heart, the journal of the World Heart Federation, women are twice as likely to die within one year even if they do survive a heart attack compared to our male counterparts.(2)

So if – and each of these is still, sadly, a great big fat IF for too many women – we survive the actual cardiac event, and if we are near a hospital that’s able to provide an experienced team of cardiologists/cardiovascular surgeons/cardiac nurses, and if we are correctly diagnosed, and if we receive timely and appropriate treatment, and if the resulting damage to our oxygen-deprived heart muscle is not too severe, we get to finally go home, safe and sound.

And that’s where the real trauma starts.   Continue reading “The day I made peace with an errant organ”

Are you a victim or a survivor?

by Carolyn Thomas  @HeartSisters

In Dr. Wayne Sotile’s very useful book for all freshly-diagnosed heart patients called Thriving With Heart Disease, he nails the description of what he calls the patient’s homecoming blues.  It’s that need to adjust from being cared for 24/7 in hospital following a cardiac event to suddenly being booted out the door and sent back home. For example:

“You’re now home from the hospital, and you’re expected to surf a bewildering wave of emotions, anxieties and procedures.

“Moving very slowly, bouts of depression, weeping, social withdrawal or obsessive anxiety about dying – these are all normal during the early stages of heart disease.”

Normal or not, I found “obsessive anxiety about dying” to be an extremely unpleasant way to live in the days following my own heart attack.  Continue reading “Are you a victim or a survivor?”