What I wish I knew back then: “Stop apologizing for needing help!”

by Carolyn Thomas    ♥   @HeartSisters

Two weeks before being hospitalized with what doctors call the “widow maker” heart attack, I was sent away from the Emergency Department in that same hospital with an acid reflux misdiagnosis – despite presenting with textbook heart attack symptoms like central chest pain, nausea, sweating and pain down my left arm.  

Before I was sent home that day, I apologized profusely to the Emergency staff for wasting their valuable time. I felt embarrassed because I’d just made a fuss over nothing, because I’d made genuinely sick people wait that morning, and because I was clearly incapable of telling the difference between a serious cardiac crisis and indigestion. Once discharged home, when my symptoms worsened (which, of course, they DID!), there was no way I was going back to that Emergency Department to be further embarrassed – until day after day after day, those symptoms became ultimately unbearable.    Continue reading “What I wish I knew back then: “Stop apologizing for needing help!””

Women’s heart disease: wrong symptoms, wrong words or wrong diagnostic tools?

by Carolyn Thomas    @HeartSisters   

I walked out of our local hospital’s Emergency Department after having my textbook heart attack symptoms misdiagnosed as acid reflux. Much later, my increasingly debilitating cardiac symptoms were finally correctly diagnosed (same hospital, different Emerg doc). But after my hospital discharge, my pushy family and friends kept asking me about that first visit to Emergency: “Why didn’t you demand to see a cardiologist? Why didn’t you ask for more tests?”

As I was soon to learn, that is so NOT how most health care systems work – especially for female patients.    .    .   Continue reading “Women’s heart disease: wrong symptoms, wrong words or wrong diagnostic tools?”

“The doctors want my symptoms but not my stories”

by Carolyn Thomas     @HeartSisters

Marilyn Gardner, in her 2014 book called “Between Worlds: Essays on Culture and Belonging“) wrote about a compelling conversation she once had:

Yet our physicians aren’t trained to embrace our stories, but instead to ask right away, “What brings you here today?” to kick-start a brief Q&A that can most efficiently solve the diagnostic mystery sitting across from them.      .     .    Continue reading ““The doctors want my symptoms but not my stories””

A heart film to watch before “Pinktober” arrives

by Carolyn Thomas  @HeartSisters

We’re approaching the Pink season, my heart sisters. It’s that time of year when breast cancer awareness campaigns and their accompanying corporate marketing shills rev into high gear. Last Pinktober, we saw pink buckets of Kentucky Fried Chicken, pink-handled Tasers, and (yes, seriously) pink Smith & Wesson handguns – each somehow helping us to be more aware of breast cancer.

What could possibly top what breast cancer survivor and author Barbara Ehrenreich calls this “cult of pink kitsch” again this year?

From my perspective as a 35+ year veteran in the public relations field, I have to say that my friends working in breast cancer fundraising have done a fabulous job in raising awareness of their cause. So fabulous, in fact, that they have erroneously convinced women that breast cancer is our biggest health threat.

It is not, of course.  This year, heart disease will kill 5-6 times more women than breast cancer will.  In fact, heart disease kills more women each year than all forms of cancer combined.  Continue reading “A heart film to watch before “Pinktober” arrives”