Could you wait 10 years for a cardiac diagnosis?

by Carolyn Thomas  ♥  @HeartSisters

My pal Cheryl Strachan, a Registered Dietitian in Calgary and author of my favourite cookbook for heart patients (30-Minute Heart Healthy Cookbook: Delicious Recipes for Easy, Low-Sodium Meals ), contacted me on February 13th (our national ‘Wear Red Canada’ Day) to ask:

Are you watching today’s ‘Wear Red Canada’ webinar?  If you’re  listening to Bobbi-Jo Green’s heart patient story, I’m picturing smoke coming out of your ears!”

Cheryl had guessed correctly. By the time Bobby-Jo finished her webinar presentation, I was livid. Continue reading “Could you wait 10 years for a cardiac diagnosis?”

Diagnostic uncertainty: when we just don’t know

by Carolyn Thomas      @HeartSisters

The image above is all about uncertainty. It’s like a 5-step roadmap that you’d use when traveling an unfamiliar road to a new destination you know nothing about and do not want to visit.(1)  For people experiencing scary symptoms they fear might be heart-related, for example, uncertainty about what’s happening now and what will happen next is pervasive. But a new study published in the journal Patient Education and Counseling reminds us that patients aren’t the only ones facing uncertainty around a medical diagnosis: “Both patients and clinicians experience diagnostic uncertainty, but in different ways.”(2)        .        .   Continue reading “Diagnostic uncertainty: when we just don’t know”

Women’s heart disease: is it underdiagnosed, or misdiagnosed?

by Carolyn Thomas    @HeartSisters

Do you know the difference between a medical condition that’s underdiagnosed, and one that’s misdiagnosed? I thought you’d never ask. . .  Underdiagnosis is a failure to recognize or correctly diagnose a disease or condition, especially in a significant proportion of patients, as in: “Heart disease in women is still being underdiagnosed compared to our male counterparts.”(1) But misdiagnosis is an incorrect, partial or delayed diagnosis of one individual’s illness or other medical problem, as in: “I left the Emergency Department with a misdiagnosis of acid reflux despite my textbook heart attack symptoms of central chest pain, nausea, sweating and pain down my left arm.”

The trouble is this: the more that misdiagnosis happens to individual women, one after another, the more likely we are to continue seeing underdiagnosis of women heart patients as a whole. Thank you to these heart patients who shared their own experiences of surviving a misdiagnosis: Continue reading “Women’s heart disease: is it underdiagnosed, or misdiagnosed?”

“It’s not your heart. It’s just _____” (insert misdiagnosis)

by Carolyn Thomas    @HeartSisters

It’s fair to say that you would not be reading these words had my heart attack not been misdiagnosed with a cheerful “You are in the right demographic for acid reflux!”  Had I been correctly diagnosed, admitted and appropriately treated during that first trip to the Emergency Department, I would likely never have started this blog in 2009. Nor would I be still writing years later about female heart patients being misdiagnosed in mid-heart attack.

We know that women continue to be under-diagnosed – and then under-treated even when appropriately diagnosed – compared to men presenting with cardiac symptoms.  In fact, as reported in the New England Journal of Medicine, female heart patients in their 50s and younger are seven times more likely to be misdiagnosed than our male counterparts.(1)

You know your body. You KNOW when something is just not right. Even if, like the following women, you too are sent home, do not hesitate to return to Emergency or to your physician if symptoms worsen.

Here’s my latest round of true tales from women whose cardiovascular disease is still being missed.    Continue reading ““It’s not your heart. It’s just _____” (insert misdiagnosis)”