Life before diagnosis: not as perfect as we recall?

by Carolyn Thomas    @HeartSisters  September 1, 2019

Like most of us, my time on this earth has been bookmarked by a number of important “before” and “after” experiences: the way I lived my life before key events occurred, and the way my life changed after they occurred. Before and after I got married. Before and after I became a mother. Before and after I ran my first half-marathon. But one of the most profound changes has to be before and after the fateful day in the ER when a cardiologist told me,“You have significant heart disease”.

Many of us living with a chronic and progressive illness like this often view these periods of life as two parts: the normal and wonderful times before the traumatic diagnosis, and all the not-wonderful days that have been happening ever since.     . Continue reading “Life before diagnosis: not as perfect as we recall?”

The “loss of self” in chronic illness is what really hurts

by Carolyn Thomas     @HeartSisters

People living with chronic illness already know that the triple whammy of ongoing physical symptoms, psychological distress and the discomfort of medical procedures can cause us to suffer. But when California sociologist Dr. Kathy Charmaz studied chronic illness, she identified an element of suffering that is often dismissed by health care providers.(1)

As she explained in research published in the journal Sociology of Health & Illness, a narrow medicalized view of suffering that’s defined as physical symptoms only ignores or minimizes the broader significance of suffering in a way that may resonate with you if you too live with a chronic illness like heart disease:    

Continue reading “The “loss of self” in chronic illness is what really hurts”