Heart Sisters


How does it really feel to have a heart attack? Women survivors tell their stories

 women heart attack

Having a heart attack felt nothing like I thought it would feel.   For one thing, unlike sudden cardiac arrrest, in which the heart stops beating and you stop breathing, during my heart attack (myocardial infarction), my heart continued beating, and I was conscious throughout despite horrific symptoms – so how could I possibly be having a heart attack?

Like most women I know, I thought very little about heart disease, even though it is our #1 killer each year. Women need to know all the potential symptoms of a heart attack, and demand help immediately if these symptoms do hit.

Thank you to my Heart Sisters from WomenHeart’s online support community who have generously volunteered to share these compelling survivor stories here with us:

Debra, age 42, USA: “I was under a lot of stress the week I had my heart attack. My first symptom was an odd squeezing sensation in my chest, as if someone reached out and grabbed my heart and squeezed it a few times. No pain – it really didn’t hurt. After my chest sensations went away, my upper back between my shoulder blades started to ache immensely. Later, I felt an odd numbing/tingling sensation move up my arm, which immediately made me worry and was the reason I went to the ER, as I knew this was a classic heart attack symptom. My chest sensations went away after I used my emergency inhaler (for asthma) as I had mistaken the beginnings of the heart attack as an asthma attack. But my back pain fluctuated, and arm tingling did not go away.  In hospital, doctors found a  94-96 % lesion in my left anterior descending coronary artery (LAD – the dreaded ‘widowmaker’ heart attack) that they were going to stent. But after the first stent was implanted, an area in my artery near the stent dissected (tore) and I had to have emergency double bypass open heart surgery. I did not recognize my initial chest sensations and back pain as a heart attack and as a result I did not seek immediate help. Now approx 41% of my left ventricle is damaged. I was diagnosed with congestive heart failure a few weeks after being discharged for my heart attack.”

Sandra, age 37, USA: “I woke up at 3 a.m. and my first symptom was heartburn, even though I’d eaten nothing that might cause that.  My husband brought me antacids, then a sharp pain went through my back and I told my husband I felt like I was going to die – all in the matter of one minute from the initial symptom.  My heart actually stopped and I had to be defibrillated twice in hospital, and then was unconscious for four days. Three more trips to hospital afterwards, but no plaque, just spasms that felt like heartburn, nausea and sometimes chest pain (it is hard for me to tell the difference!)

Lidia, age 56, UK: “The first symptom of my heart attack was heartburn – first time I’d had heartburn in 26 years since I was pregnant. I had no pain at all, but this heartburn would not go, no matter what I took for it. This was on my birthday, and I’d had too much to eat and drink! I Googled ‘heartburn’ and up popped ‘heart attack symptom’  - so I took an aspirin and went to hospital, where cardiologists implanted a stent in my LAD. During the previous few months before this day, however, I’d been aware of occasional palpitations, but I’d put it down to too much coffee and not enough sleep.”

Laura, age 40, USA: I was asleep and my symptoms woke me up. I had several simultaneous symptoms, but the first one seemed to be chest pain in the centre-left, somewhat under my left breast area. I’d never felt anything like it, so sometimes it’s hard to describe – it wasn’t sharp or crushing or burning, more like a dull pressure. I also had pain down the inside of my left arm that radiated up into the left side of my jaw and my left ear. I was very overheated, and I felt like I was going to throw up. The nausea and overheating faded, but the pain – chest, arm, jaw – stayed. In hospital, I was diagnosed with a heart attack caused by SCAD – spontaneous coronary artery dissection, treated with six stents.”

Sulma, age 61, Mauritius: The sequence of events is so vivid in my mind. Before my heart attack, I had had some shortness of breath after exertion, like going upstairs. My first big cardiac symptoms were a discomforting epigastric pain and a tightening chest pain that woke me up at 4 a.m. from my sleep. This gradually radiated down the left arm, a numbing sensation. I started sweating as the pain grew in intensity during my trip to the ER, which took about 25 minutes. I was restless every second, and the pain in my chest became unbearable and tight. These symptoms persisted until I was given an injection and rushed to the Cardiac Unit for angioplasty and one stent implanted in my LAD.  As it was placed, all the pain went away.”

Martie, age 46, USA:  “There is a  lot of heart disease in my family. My first symptoms were heartburn that progressed to a pressure on my chest. The pressure got to a certain point, but did not get progressively worse.  I also had a strange aching feeling in my elbows. It was weird, like arthritis I think, that became worse with time. But the most prominent symptom I had, which did keep getting stronger and would not go away, was the little voice in my head telling me this was not normal. I wanted to mention this because it is my one piece of advice to all my friends:  ”Listen to that voice in your head!”    When we got to the ER, when staff heard that I had both chest pain and this odd pain in my elbows,  they took me right in quickly!  Even before my first obvious symptoms, I had noticed a dead tired, flu-like fatigue, “tired to the bone through and through” as I told my son.  I almost went home to bed after driving the kids to school (I would be dead now! I needed groceries first though!) My symptoms did change a bit – one would subside, and another would get worse. The only one that got  much worse was in the elbows!  I had to be air-lifted to a hospital with advanced cardiac care. Cardiologists there found a large unexpected arterial tear (SCAD: Spontaneous Coronary Artery Dissection) and repaired half of it with three stents. They left the other half to heal itself.  Three weeks later, they found that it had indeed healed.”

Sharon, age 43, New Zealand: “My heart attack started as I was walking across a flat lawn on my way to feed our goldfish. The pain struck out of the blue. I had no idea that a heart attack could present with pain in the back rather than the chest. My first symptom was a strong pain in between my shoulder blades, a lot like very bad indigestion but in my back instead of my tummy. A few minutes after the pain in my back started, I got very, very hot, then I felt nauseous. Then after several minutes, I felt the pain travel through into my centre chest, and then down my left arm to my hand. Like many others, that’s when I guessed that this might be serious. The pain kept increasing in my back until it was unbearable, but the other symptoms pretty much stayed the same until I was treated in hospital. Thank heavens for morphine – yay!  I was diagnosed with a heart attack caused by SCAD (Spontaneous Coronary Artery Dissection) of the LAD (Left Anterior Descending coronary artery). Two stents were implanted. They were tough days.”

Dawn, age 49, USA: “I was asleep and woke up not being able to breathe. I felt an ache in my left shoulder blade. My throat felt ‘full’ and my lips were numb. These symptoms came and went until I ended up in hospital and had four stents implanted. But even before that night, I’d been feeling extremely tired; I kept telling my hubby I wasn’t sick, but something was wrong. I never had any chest pain at all until six months AFTER my heart attack.”

Gloria, age 63, Canada: “I had a tremendous, dull, pressing pain in the centre of my chest, as if a walnut were being pushed into it.  I also had numbness in my right shoulder radiating down my arm and felt as if the arm suddenly became weighted. Later, the same symptoms were manifested in my left shoulder and arm. Chest pain stayed, but the numbness in both arms gradually went away. This was replaced with blinding pain in between my shoulder blades. Once started, the back pain only got worse. I could no longer sit, stand, lie down or walk around. The pain was so intense it took my breath away. I remember thinking that these were signs that you could be having a heart attack. These events took place between 4 p.m. on Christmas Eve 2007 and about 11:30 a.m. on Christmas Day, before I finally thought it was serious enough to get my son to drive me to our local  hospital. These just didn’t sound like the classic cardiac symptoms I had heard of. I lost conciousness while the ER doctor was trying to convince me it was a gallbladder attack and not a heart attack. It took three days to stabilize me before I could be flown to the cardiac centre in Victoria, where I had an angioplasty done with two stents implanted. The previous two months had been unbearably stressful. I would get out of breath walking, but I just put that down to steep hills in town. I had put on weight, and the week before the heart attack, for some reason I gained 10 pounds. Maybe someone will read this and decide not to wait as long as I did.”

Diane, USA, heart attack at age 33: My first heart attack was 23 years ago but I remember it as though it were yesterday. I had just turned 33 the month before it happened. I put my 3-month old baby to sleep in her crib, checked on my older daughter and went to the living room to relax before heading to bed myself. My first symptom was like a fist in the center of my chest, pushing and squeezing to get out. The pain felt as though someone was gripping me inside right in the center of the sternum and squeezing until I could hardly breathe. My left arm hurt from the shoulder to the elbow, then stopped and picked up hurting at my wrist into my hand. I started feeling very sick to my stomach and vomited until there was nothing left, but still continued retching. I was sweating like crazy. I woke up my husband, and told him I thought I was having a heart attack, but not really believing that was happening because I had no clue what the symptoms of a heart attack were. While waiting for the ambulance, I went from abnormal sweating to freezing cold. In hospital, they diagnosed a 98% blockage of the LAD, which they did angioplasty for. I spent 15 days in hospital. I had just given birth three months prior, but even during the pregnancy and afterwards, I had been getting that same feeling in my chest off and on.  I had mentioned it to the ob/gyn but they told me that I had so much amniotic fluid that it was pushing my insides up into my chest and that was the cause of the feeling.

My second heart attack happened 10 years ago when I was 46. I was having ongoing problems with unstable angina so I had to have a stent implanted. The day after I came home from hospital, I walked into my living room and all of a sudden, I had this overwhelming feeling that something was terribly wrong. I told my husband to call 911. In hospital, they stabilized me and sent me to another hospital, where a cardiologist attempted to open up the new stent that had just been implanted. It had closed up, causing another heart attack. I went into cardiac arrest twice. I am now 56 and in need of bypass surgery for another blockage in the circumflex artery which they are unable to stent. Since I am not having symptoms, they are holding off on it, to my relief.”

Kathi, age 55, USA: “I awoke around 1:30 a.m. and felt pain down my right arm. It intensified as time went on, with the pain/tightness extending to my chest area. I had intense nausea and began vomiting and having bouts of rampant diarrhea in between. When I got to the hospital, the cardiologist found my LAD had collapsed without any coronary artery disease. While he was implanting two stents, he caused a hole in my artery, so had to put in a third stent. I believe that my heart attack was caused by stress and by an overdose of a variety of hormones prescribed for my chronic fatigue syndrome. Even before that night, I’d felt flu-ish with no energy, not unusual with CFS. I didn’t feel quite right, but I had no clue what it was and because I have CFS, I thought it may be related to that. One day, I noticed difficulty in getting my teeth to feel clean. All that day I felt like I needed to brush my teeth ( and did) but they wouldn’t feel clean like they always did when I brushed them. I am very aware of my body and what goes on with it.”

Monica, USA, heart attack at age 32: One month prior to my heart attack, I was not feeling well with chest pains, lock jaw and fatigue. But my first real symptom was at 5 a.m. – pain in mid-chest radiating into my back and into my throat. I felt like I was being strangled, pain spreading into my throat and ears. The pain literally felt like 10,000 elephants sitting on my chest.  In the ER, because of my young age and the fact that I weighed only 100 pounds soaking wet, they thought I was a drug user. I was later told I’d had a massive heart attack.  I spent two days being stabilized before having a stent implanted, but instead of the stent, I was taken straight in for emergency bypass surgery. My heart now has severe damage to the left lower chamber. Last spring, 10 years after my heart attack, I had to go back into hospital to have an implantable cardiac defibrillator (ICD) put into my chest. I have named my ICD “Trigger”!

Allie, age 51, USA: “I’ve had two serious cardiac events with different symptoms for each one, so I’ll tell you both stories.  My first symptom in January was incredible fatigue. I was sitting in bed, watching TV and could suddenly no longer even hold my head up. The next day began six weeks of on-and-off symptoms of nausea, dizziness, back pain in my left shoulder blade (which eventually began to radiate through to my chest), profuse night sweats and feelings of being intolerably hot. I began having panic attacks (my first ever), feelings of doom, and severe anxiety. The back pain felt like a muscle knot. After a while, it seemed to hurt all the way through my body to my chest with that same soreness and knot feeling. My symptoms were not related to exertion. When I went to the hospital, I had to have emergency open heart surgery for a triple bypass.

But almost immediately after my bypass surgery, the bypass grafts began to fail. My chest pain this time felt sharp and pinching as if my clothes were too tight, then it moved up the left side of my neck. My throat felt full, and it was hard to swallow. My left jaw ached (like a dull toothache, or maybe having a piece of popcorn stuck). I also felt dizzy, hot, nauseated and anxious. Any activity or emotional stress brought on chest, neck and jaw pain, but other symptoms came on without any reason. These symptoms came and went for over two months and were ignored by my cardiologist because he said they were different than pre-bypass. Finally, I was correctly diagnosed and had two stents implanted to open the failed bypass grafts.  Two new blockages remain. I also have Peripheral Artery Disease (PAD) which is usually associated with coronary artery disease and strokes. I had symptoms of this even before my cardiac symptoms began – which I ignored.”

Misty, age 26, USA:     I was  35 weeks pregnant and feeling really tired because we had just put up the new baby crib the night before. I went to sleep, but woke up to this weird constricting feeling in my lower throat, like I had a lump of something stuck there. The feeling went down to my upper chest and continued down to the lower chest area. It wasn’t pain, just more of a squeezing, restricting feeling. I then started to get a slight pain that felt like acid relux. I started to feel faint so I woke up my husband. I was sweating profusely, nauseated, had the chills and felt faint. And I also had a very weird tingling and numbness in BOTH arms from my shoulders to my elbows. We went to the hospital, where I was told that I’d had a massive heart attack caused by an aneurysm. It had exploded and made a tear in one of my heart valves, allowing blood to flow through the layers and squeeze the valve. The doctors say my body just couldn’t handle the stress of the pregnancy. I ended up having an emergency C-section and triple bypass surgery. I have also had an ICD (Implantable Cardiac Defibrillator) placed because my heart muscle has not healed the way they wanted it to.  But even before that day, I’d been feeling tired and short of breath, and I had just blamed it on being pregnant. Now I can see all these issues as cardiac problems and not just pregnancy.”

Joyce, age 60, USA: “My heart attack happened on the stress-treadmill in the cardiologist’s office.  He handed me a nitroglycerin tablet to put under my tongue. I had extreme shortness of breath but felt no pain that I remember. I had had some symptoms in the weeks before, such as tightness in the chest and extreme pain in my left shoulder blade. I also had these same symptoms months earlier, but dismissed them as just a pulled muscle after lifting heavy luggage. Even my doctor thought I had pleurisy or a virus, but sent my EKG ( with an unusual T-wave) to the cardiologist who wanted me to come in for the stress test. I was lucky to have my heart attack on the treadmill, because a subsequent angiogram showed no blockages, but a diagnosis of Prinzmetal’s Angina.”

Kim, age 52, USA: “I’d been feeling extremely tired for some time.  One day, I was putting the vacuum cleaner away, and suddenly felt as if I’d pulled a muscle in my chest, in the center of my sternum, like a tight, heavy pain.  I was sweating profusely and feeling nauseated. I had pain/tingling in my left arm, and then I blacked out. When the paramedics arrived, they gave me nitroglycerin which eased the symptoms temporarily. In hospital, I had to have two stents implanted and spent two days in ICU because of low blood pressure.”

Amy, heart attack at age 28, USA:  “I had crushing chest pain while I was pregnant, along with sweating and nausea. I was told it was the baby kicking my diaphragm. These symptoms continued for two years, off and on, usually brought on by exertion. After pregnancy, I was told it was exercise-induced asthma, then pleurisy. Finally, after a bad episode (burning up and down my chest – like heartburn on steroids, sweating, nausea, vomiting, tingling in my arms and legs  - both sides, stabbing shoulder pain and shortness of breath) I was finally sent for a stress test, where heart attack damage was found. By this time, even walking across the room or watching something emotional on TV (like a Hallmark commercial!) would set off symptoms.  I was taken to hospital, but during my angiogram, I had a massive heart attack on the table. I had to be transferred to another hospital and had an emergency double bypass. **My unsolicited advice: don’t have an angio in a hospital that doesn’t also offer excellent open heart surgery. The balloon pump did quite a bit of damage to my arteries during the transfer.  Since those first undiagnosed cardiac symptoms at age 28, I’ve had a second heart attack and double bypass surgery at age 30, nine cardiac stents and three iliac artery stents implanted at 30 and 31, and then triple bypass surgery at age 31.”

Kimber, age 46, USA: “My first symptoms felt like a blow to the chest, like a shotgun smack dab in the middle of my chest. It immediately took my breath away and knocked me backwards about 3-4 feet. I also had an intense drilling pain under my left funny bone. The symptoms did not let up. At the time, I was just sitting at my desk.  Doctors found 0% plaque in my arteries – I was diagnosed with a coronary artery spasm from Prinzmetal’s Angina.  I remained several days at two different hospitals. My first heart attack was on May7th and my second was on May 22nd.”

Gill, age 49, UK: I had what I later found out was classic angina, severe tiredness and increasing chest pain, treated for all sorts of things, including inflammation of the sternum, but it got steadily worse over six months. I then had an angiogram that showed severe disease in two of my coronary arteries. I was treated with various medications over six months, but steadily worsened. Then doctors attempted a stent placement, which failed and I was sent home the same day with a small dissection (tear) which I was told would heal by itself. But two days after the dissection, while watching TV, I had increasingly unstable angina, unresponsive to nitroglycerin, with sweating and nausea. I went to the ER where I had a bigger heart attack, with crushing pain, pain radiating up into my throat and tongue, nausea, vomiting and sweating, plus pain in my left arm.  These symptoms came and went, in between different drugs they were giving me. A further angio showed that the dissection had not healed but extended, and the artery was full of blood clots. I was then sent immediately by ambulance with police escort to a cardiac unit a couple of counties away, where I had four stents implanted.  This did not cure the problem,  however, so two months ago I had to have double by pass surgery.”

Nancy, age 44, USA: “I believe I had SCAD (Spontaneous Coronary Artery Dissection) 10 years ago, but was misdiagnosed with costochondritis, 11 days postpartum. Two years ago on a Sunday afternoon, I had a strange spell of nausea, headache and faintness out of the blue - a combination of sick feelings that lasted a few minutes, and which struck me as unusual. I lay down and felt better. That was the day before more heart attack symptoms started after some heavy exertion, again due to SCAD. I think the artery must have torn a bit that Sunday, but it was not yet severe. 

The next morning (my theory) the tear extended after physically demanding exertion, then I had the heart attack.I think this is important to clarify because one could conceiveably prevent the dangerous extenson of an arterial tear by avoiding exertion (if you’ve had the prior symptom of unusual faintness/nausea). Get medically checked out if you have that unsettling out-of-the-blue nausea/faintness feeling. Do not engage in physical exertion until cleared that your heart is ok.

I went to hospital with very painful central chest pressure, labored breathing, pain/numbness radiating to throat and arm, difficulty standing or talking. In the ER,  my blood tests showed elevated troponin cardiac enzymes (confirming heart attack, which the ER doc initially diagnosed as anxiety). I was taken to another hospital where the dissection was discovered and I received two stents. Two days later, two more stents were implanted for an intractable spasm of the left anterior descending coronary artery (LAD). The pressure and pain from the LAD spasm felt more life-threatening than my dissection, maybe because it was a bigger artery?

 But even before those events, for some time I’d had non-pain angina symptoms like chest pressure and shortness of breath. I thought it was just from exertion or allergies. It felt like your chest and breathing might feel when you exercise in very cold weather. I’d also had spells of chest tightness when awakening, which I just attributed to anxiety because we had a child health crisis going on.”

Erna, age 49, USA: “Late one evening, I was working on a website for my son-in-law when I started having some pain in my right arm and thought that maybe I had worked my arm too much with the computer mouse. But the pain started radiating into my shoulder and after this into my back. There was no pain in my chest. I thought it was time to quit, and I did some meditation. I had no memory of anything else until the next morning, when I awoke and felt awful. I could not breathe, my back hurt, and I felt like throwing up but could not. The symptoms got steadily worse and I called 911.  The firefighters and paramedics who responded knew right away that it was a heart attack when they saw my EKG.  When we got to the ER, however, the doctor told the nurses to take the EKG leads off because I was just having a panic attack. But the paramedics were still there and they insisted that my leads be placed on again, and that’s when they saw my pulse flip-flopping on the monitor. I was sent by helicopter to a different hospital where I had three stents implanted. It was very scary.”

Corby, age 51, USA: “My first cardiac symptom was anxiety and pressure in the upper chest – I tried to dismiss it as indigestion. (I also ignored the pain in the back – even months before, generally when I was feeling stressed). I had swelling in the hands and feet, was out of breath climbing stairs – I thought it was just the cold air. These came and went. Then I had a squeezing feeling, pressure in the center of the chest and towards the left but still felt like severe indigestion. My head and arms broke out into a cold sweat and felt clammy. I had nausea and the ‘dry heaves’.  I was driving myself to work and decided to pull into the ER on the way. I had emergency bypass surgery for a blockage in my left anterior descending coronary artery (LAD) with a mammary artery graft.

This week, six years later, I just got out of the hospital again with a blood clot in my lung. I thought at first I was having another heart attack. The symptoms were crushing pain to the chest and numbness in the arm, a clammy feeling, cough, low grade temp. I am on blood thinners and they don’t know why this happened.”

© 2009 Carolyn Thomas www.myheartsisters.org

Together we're better - WomenHeart Support Community

See also:

Add to FacebookAdd to NewsvineAdd to DiggAdd to Del.icio.usAdd to StumbleuponAdd to RedditAdd to BlinklistAdd to TwitterAdd to TechnoratiAdd to Furl

What do you think?  Share your opinion below, or return to homepage

 

22 Responses to 'How does it really feel to have a heart attack? Women survivors tell their stories'

Subscribe to comments with RSS or TrackBack to 'How does it really feel to have a heart attack? Women survivors tell their stories'.

  1. Linda Lansdowne said,

    I posted a link to this page on the members forum for the Track Your Plaque website. Thank you for collecting these stories!
    Linda

  2. April said,

    Oh my God, these stories are such an eye-opener, but most of it is scary. Heart attacks occur to people who don’t even know they are having one. I’m glad I ran into this website and read it. Now, I’m aware of the dangers and the symptoms of having a heart attack. Thanks for posting all the stories.

  3. Slava Bellis said,

    So interesting, lots to think about here. thanx for this.

  4. Gloria sponselee said,

    How different all the stories are and yet so frighteningly similar. We wait so long because we don’t want to be a nuisance or cause a scene. Oh, and how embarassing to be wrong and waste everyone’s time. Time is your life. Thanks for reminding even those of us whose stories you told.

  5. Nancy age 44 said,

    Just correcting a mistake in the synopsis of my story above:

    My classic HA symptoms (caused by “SCAD”) did not come out of the blue, they followed physical exertion. It was my day-before-the-Heart attack-nausea symptom that came out of the blue. That is probably when the artery began to tear, but not enough to cause HA.

    The next morning (my theory) the tear extended after physically demanding exertion, then I had the heart attack.

    I thnk this is important to clarify because one could conceiveably prevent the dangerous extenson of an arterial tear by avoiding exertion (if you’ve had the prior symptom of unusual faintness/nausea) .

    Get medically checked out if you have that unsettling out-of-the-blue nausea/faintness feeling. Do not engage in physical exertion until cleared that your heart is ok.


    • Thanks for clarifying that, Nancy. Most women have never even heard of SCAD (Spontaneous Coronary Artery Dissection) so your experience will help educate others. I’ve edited your story to include your comments.

      Regards,
      C.

  6. ~Lin~ said,

    Hi,
    I too had a very unusual experience. 6/6/09 I was siting in bed, suddenly the though just entered my mind “What if I died today”? (I NEVER thought things like this) then I had what I call an Orb start at the top of my head and go through my body to the tip of my toes! My chest had a weird different feeling, my left arm a small tingle, but the presence of fear was very strong, I was being told I needed to get to the hospital NOW! I called my daughter and asked her to please come over, I old her I was not feeling well and wanted to go to the hospital and get checked.
    When I finally got there and explained all that I was feeling (took forever it seemed) they were going to do a stress test, but luck for me the Dr. that was there decided he would rather I have an angiogram. They found that 2 of my major arteries were 85% blocked, the other 55% blocked, they stented 2. When I found out what had occurred, Oh my stars, that’s when I almost had a heart attack (LOL).
    I now look back at symptoms that have gone away, and pains that have stopped, (I also had Lyme Disease to complicate matters). Things Dr’s had told me “it’s because you’re getting older, you have arthritis, your skin is thin in that area, all kinds of excuses!!! I want to let people know what these things are so women all over will know and possibly relate to the symptoms I had. It may save someones life!
    ~ Blessed Be ~

    • ~Lin~ said,

      Hi, I wanted to return to give a list of the symptoms that I had, that have disappeared since I have had the stents put in, it may help someone out > I suddenly began to gain weight > I started out at 98 lbs, went to 110, then 115, 120, that was NOT me at all I KNOW my body!!! I began to get cellulite in my thighs butt and upper arms.The right side of my neck would get a pain that felt as though someone stuck it with a long pin for 5 seconds, that was VERY intense! My right thigh (in the center) felt a though it were being amputated with a dull saw, that would ache for 2 weeks at a time, then stop for a while, then return 2 weeks, constantly!!! I had bags under both my eyes that were so puffy, looked like I never slept.My left arm had tingles and strange pains on & off all the time. The area under my neck, above my chest looked a dirty colour all the time, I asked the skin Dr. what was wrong (you have thin skin in that area),
      EVERYTHING iI mentioned above – GONE – I have lost 30 lbs. and I have not tried to loose weight, ALL the pains have gone, never to return, the discoloration, is now the same as the rest of my skin (guess the skin got thicker) LOL, the PUFFY EYES, GONE!!! Cellulite – GONE!!! I don’t look at all my age, I feel Immortal! I am now going to cardiac rehabilitation which is a fantastic way to get back in shape – and give your confidence back, I am doing Great, and feel better with each passing day.

      This site is also fantastic, it’s nice to see how other woman feel and share our feelings. I hope this helps someone!!! ~Blessed Be~

      • Lin said,

        Hi,
        here I am again, a few months later. My BD was 1/30, I remember hearing somewhere people die close to their BD. Well, I guess that stuck in my head, I ended up having pains that I thought were heart-related, so I ended up in the hospital.

        I had a stress test and a few other tests (made me feel much better). However, I followed up with my Dr. and he said out loud what I didn’t want to say or hear: I have Lyme Disease again. (3rd time) I tried taking antibiotics and got very sick for 2 days. I am not taking them now. I am just taking my heart meds as I have been, I am looking for an alternative way to treat the Lyme Disease.

        Right now I am thinking positive, and refusing to allow it to get me down!!! Does anyone else out there have Lyme disease too, if so, how are you treating it???
        ~Blessed Be~


        • I’m sorry to hear of this development, Lin, especially since just a few months ago you were feeling so great! I’m not familliar with effective treatments for Lyme except antibiotics. You’re probably already familiar with this Lyme Disease organization: http://www.ilads.org/lyme_disease/about_lyme1.html
          Good luck – hang in there and please keep us all posted.
          C.

          • LadySelene said,

            Hi, I wanted to let you know, I have found an excellent woman cardiologist. I am no longer feeling like a number.

            I am not taking anything for Lyme (I don’t feel I have it back). She sent me for a few tests, and I feel so much better! She has made a big difference. She has given me peace of mind, which we all know makes you less stressful about things we don’t understand. I also wanted to Thank you very much for your response and your site =) I read everything that comes in (RSS). I have learned a LOT in 1 year thanks to ALL these Beautiful Ladies … ~Bright Blessings~

  7. delmado said,

    I have always wondered what it would be like and if I would know- I am overweight, I’ve had extreme stress in my life over the past 30 yrs, due my husbands illness, I have high blood pressure {which I am on meds for} and my cholesterol is high- I don’t dwell on this subject but……. I have had some symptoms before and wondered.. The weight is slowly coming off and I am aware now of what to look for- thanks sooooo much.

  8. Lin said,

    Wow!!! Great stories. I have never thought this thing can be so close to us.

    Thank you for collecting the stories. They are a good read.

  9. LauraHC said,

    Thank you so much for compiling all of our stories and weaving them together into a coherent whole. I’ve posted the link on my Facebook page and will be sharing it with all of the other women in my life.

    best,
    Laura

  10. Lois said,

    My gosh, this is fantastic! Carolyn, we must talk. This is what I was writing you about for my literary agent. But, I’ve never had any willing participants to tell me! Of course, my problem these past six years is that I always seem to be surrounded by women where I’m the only heart disease survivor. I need to find more forums, I’m trying! I want to reprint on my blog. But, I’d love to get your story STILL! and perhaps two more pages of these kind to use for my book. And then I have to get it together to buckle down and finish it. Write me so I don’t take up any more space here! Such a great article on the “devil himself”. Both the cardiologists that sent me home, one with disgust, wore white coats, had the clipboard, and sat next to me with his legs crossed properly! It was the male nurse who got it right and a young woman intern doctor that demanded finally I stay in the hospital. My husband and I heard the white coat arguing with her that I should go HOME… I refer to him as an ugly man…

    • Kimber Attkisson said,

      Morning Carolyn,
      My name is Kimberly Attkisson, I’m one of the women whose story is mentioned above (Kimber, age 46, USA).At the time I wrote about my H/A symptoms I did it in “short story” – I now think it’s important to give full details.

      March 2009 I was offered a “once in a life time” position. I chose to leave a company where I had been working for almost 11 years. I started my new job April 7th 2009 – everything was going great, and I felt like the most blessed person alive.

      May 7th (a month to the day) I was at work sitting at my desk humming the Olive Oil and Popeye tune “do, to-do, to-do” when all the sudden it felt as if I had been shot with a shot gun smack dab in the middle of my chest. The impact had knocked the wind out of me and though I was sitting, I was literally pushed back in my chair 2-3 feet. My mental state was momentarily marred as many things were running through my head; “I have to get to my desk so I could use it to help me stand up” – “I need to get outside to catch my breath”. I looked at the clock and thought “I have another 45 minutes before I go home”…..many things were running ramped in my head. I then felt as if someone was drilling under my elbow (funny bone area).

      Doctors say my heart enzymes secretion was 15.9 and that I had all the “un-classic” symptoms of a heart attack, my angiogram showed 0% plaque, they assumed it was a blood clot until I had another H/A (similar symptoms but less severe) May 22nd.

      So here we are today, thankful to be alive while taking daily doses of slow release nitro in hopes of preventing a third…

      Kimberly Attkisson
      San Diego

      “Change is hard, but more times than not… it brings opportunity”

  11. kardia said,

    I love this idea, and I think I learned a lot.

  12. Allie said,

    I just got home form the hospital and a registered nurse on the telemetry floor asked me what my symptoms had been and said, “I just read that women’s symptoms were different than men’s, that they usually are nauseated.” This from a cardiac nurse! She’s just now hearing this? I’m mailing that unit a copy of this. Thanks so much.

  13. monica nanamo said,

    great job
    thanks for helping us to tell out stories

    god bless
    surviving heart disease one day at a time
    with trigger04/08
    for 10 years
    nanamo
    monica

  14. martzj said,

    I highly recommend that everyone forward this collection to friends, family and stick copies all around public areas like canteens, break rooms, gym locker rooms.

    Lives will be saved! Well done Carolyn.

  15. tuijianke said,

    I have put a link to this posting from our asthma website. Thank you. [...] Original post: How does it really feel to have a heart attack? Women survivors tell their stories [...]

  16. Twitted said,

    Thanks! This post has been highlighted on Twitter today-(12) tweets so far.


Leave a Reply