Survey: how women (and our doctors) respond to early cardiac symptoms

by Carolyn Thomas    ♥   @HeartSisters

I have often written and spoken out about an alarming reality observed among women experiencing their first cardiac symptoms. Researchers call it “treatment-seeking delay behaviour”. One of several interesting studies on this particular tendency in female heart patients was published in The American Journal of Critical Care, for example. Oregon researchers reported that female heart patients are significantly more likely to delay seeking medical treatment compared to our male counterparts – yes, even in mid-heart attack. In fact, study authors identified six common patterns of decision-making delays between the time women first experience serious cardiac symptoms and the time when they go for help.(1)  Those six patterns range from “minimizing symptoms” to “reluctance to ask others for help”.

But just in case these studies seem to suggest that women are to blame for poor cardiac outcomes because we wait too long, let’s look at how prepared our physicians are to assess cardiovascular risks in their female patients. The landmark Women’s Heart Alliance survey asked both female heart patients and physicians for their own perspectives – with surprising results, especially this particular finding:

Physicians may not feel as prepared as you think.      .

Only about 22 per cent of the primary care physicians surveyed told cardiac researchers that they felt extremely well-prepared to assess cardiovascular risk in their female patients, compared to 42 per cent of cardiologists.

But before we start high-fiving those cardiologists, let’s consider this singular  fact: these are CARDIOLOGISTS!  They have only one job. They’re the ones women see when we desperately need an extremely well-prepared expert to accurately assess our cardiac condition.

You might wonder what’s going on with the remaining 58 per cent of cardiologists who do NOT feel extremely well-prepared.  Given what we do know about women being at higher risk of cardiac misdiagnosis compared to men, this does, weirdly, make sense. Veteran U.K. cardiac researcher Dr. Sian Harding writes sternly about cardiology’s implicit bias in her new book The Exquisite Machine, published in February of this year:

“As well as being misdiagnosed, women are less likely to be treated quickly, less likely to get the best surgical treatment, and less likely to be discharged home with the optimum set of heart drugs. None of this is excusable.”

As if the findings of the Women’s Heart Alliance survey question are not concerning enough, here’s more: only 49 per cent of primary care physicians surveyed reported that their medical training prepared them to assess female patients’ cardiovascular risks. This is important because our family doctors are often the gatekeepers between us and appropriately swift treatment. How can half of family docs believe that their medical school training did NOT prepare them for the unique cardiac risk factors of their female patients?

And what about the statistics on medical training for cardiologists?  Their stats are, as you’d expect, higher than those of the family docs:  59 per cent of cardiologists reported that their training DID prepare them to assess female patients’ cardiovascular risks.

But again, what about the 41 per cent of trained cardiologists who answered that they were NOT adequately prepared during their training?

Finally – because I can stand only so much depressing bleakness at one time – just 49 per cent of primary physicians and 52 per cent of cardiologists who were surveyed agreed that women’s and men’s hearts are physiologically differentWhat this essentially means is that half of doctors surveyed haven’t yet learned that women are not just small men.

See more on male-centric medicine in my review of the book Sex Matters:  How Male-Centric Medicine Endangers Women’s Health and What We Can Do About It , by Emergency physician Dr. Alyson McGregor (but remember to take your blood pressure meds before opening her book!)

Unlike the delayed treatment-seekers that cardiac researchers write about, in my own experience as a first-time heart attack patient, I was in the Emergency Department within half an hour of my first “Hollywood Heart Attack” symptoms (central chest pain, nausea, sweating and pain down my left arm) – yet I was still told by the confident Emerg doc: “You’re in the right demographic for acid reflux!” – before he sent me home. I was terribly  embarrassed about making a fuss “over nothing”. So there was no way I was going back to that Emergency Department – until my worsening symptoms day after day had become utterly unbearable.

But hey!  Even during my second trip to Emerg (same hospital, different Emerg doc this time) I still believed that a man with the letters M.D. after his name is  correct. The only reason I forced myself back to that Emergency Department was to get serious drugs for this “acid reflux” I was suffering.

Here’s how the Women’s Heart Alliance survey of physician participants summed up their results:

“Little progress has been made in the last decade in increasing physician awareness or use of evidence-based guidelines to care for their female patients.” 

I had to go have a wee lie-down after I read that.

In last Sunday’s Heart Sisters post, I wrote about the “decade of lost ground” reported by the American Heart Association (AHA) in describing the results of their last National Survey on women’s awareness of heart disease. Awareness turned out to be actually lower than the previous National Survey from 10 years earlier!

That’s truly shocking. But when we read reports of a decade of “little progress in increasing physician awareness of women’s heart disease or use of evidence-based guidelines” , it’s time to stop pretending that this is normal.

When the Women’s Heart Alliance survey asked current physicians if they thought a national “Get Heart Checked” reminder campaign for women might help to improve poor cardiac outcomes among their female patients, most agreed – but about 12 per cent did NOT support such an initiative. About half of the doctors who disagreed said they were“worried about creating fear.”

This is just one of the many reasons I’ve come to believe that we need to shift more focus to medical education, to our future physicians – quite possibly our only hope.

For example, cardiologists and cardiac researchers with the Canadian Women’s Heart Health Centre (CWHHC) at the University of Ottawa Heart Institute were also concerned about serious gaps in medical/nursing school education, as they explained:

“Historically, most cardiovascular research, awareness, education, diagnostic testing and interventions have focused on men.  Research also points to the fact that healthcare professionals do not have a clear understanding of women’s heart health or risk factors for heart disease. There are still disparities in care in almost all cardiovascular conditions, including ischemic heart disease, heart failure, heart valve conditions and aortic disease.

“Women with cardiovascular disease are under-enrolled in clinical trials – and under-investigated, under-diagnosed, and under-treated in clinical settings.”

But unlike some academic researchers who publish their data in medical journals and then move directly on to other studies they also hope to get accepted for publication, the CWHHC team wanted to do something to help reverse this disturbing trend in women’s health care. See also: Implementation science: should research actually DO SOMETHING?

To address this known gap in clinical training, their team created nine educational modules on women’s cardiovascular disease.

These free modules target all medical/nursing trainees in Canada or the U.S. – as well as current healthcare professionals in the specialties of Cardiology, General Internal Medicine, and Emergency Medicine. Basically, they’ve already done the hard work for any medical/nursing school professor interested in improving their students’ knowledge about women’s heart disease.

Learn more on how to access these nine free CWHHC educational modules.

A big THANK YOU to the Canadian Women’s Heart Health Centre, the University of Ottawa Heart Institute, and all healthcare professionals and cardiac researchers who champion the rights of female heart patients to be appropriately diagnosed and treated.

(1) Anne G. Rosenfeld et al. “Understanding Treatment Seeking Delay in Women with Acute Myocardial Infarction: Descriptions of Decision-Making Patterns.” American Journal of Critical Care. 2005;14(4):285-293.
Maze image: Aberrant Realities, Pixabay

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Q:  How can female heart patients tell if their cardiologists are “extremely well prepared”  to diagnose and treat us?

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NOTE FROM CAROLYN:  I wrote much more about differences between men’s and women’s cardiac diagnostics, treatments and outcomes in my book, A Woman’s Guide to Living with Heart Disease. You can ask for it at your local bookshop (please support your independent neighbourhood booksellers) or from Amazon online (paperback, hardcover or e-book) – or order it directly from my publisher, Johns Hopkins University Press (use their code HTWN to save 30% off the list price).

FYI, below are some interesting results from the female heart patients who completed the Women’s Heart Alliance survey.  If you’re experiencing unusual or disturbing cardiac symptoms, and recognize your own treatment-seeking delay behaviour from this list, stop reading and get medical help!

Action taken among women reporting something wrong with their heart
%
 Told someone 45
 Told a friend 7
 Told your spouse or significant other 34
 Told a family member 16
 Called for medical attention 32
 Called 911 5
 Called the doctor 27
 Took an aspirin 12
 Nothing, just wanted to see what would happen to be sure it wasn’t something else 32
Reasons why women do not ask about heart health more often 71
 I assume my doctor will bring it up if there is an issue 49
 I don’t think I need to worry about it at my age 23
 I’m in good health, so I am not at risk for heart disease 23
 I have other more pressing issues to talk about 18
 Heart health is not something I think about 14
 I do not know what questions to ask 13
 I do not know what screenings to ask for 10
 There’s not enough time during the appointment 7
 I do not know the symptoms of heart disease 3
Per cent demonstrating heart disease risk factors
 Instructed to lose weight 34
 Instructed to exercise more 32
 Have a family history of heart disease 31
 Have high cholesterol 17
 Have high blood pressure 17
 Have irregular menstrual periods 15
 Instructed to stop smoking 14
 Had early menopause 10
 Had pregnancy complications 8
 Have an autoimmune disease (e.g. Lupus) 6
 Had diabetes 6
Told by a doctor that they have or are at risk for heart disease 16

9 thoughts on “Survey: how women (and our doctors) respond to early cardiac symptoms

  1. Hi Carolyn, thanks for your informative blogs and posts. Entirely agree that the medical curriculum needs to be overhauled for the diagnosis and treatment of females, not just for doctors and cardiologists/internists, but for nurses as well.

    I have afib and am not on any heart meds other than 81 mg Aspirin at present (was previously on Warfarin). In the past I was told oh, you just have anxiety / panic attacks / yes, and acid reflux too.

    Had two cardiac ablations in 2010 and 2011, and afib episodes just beginning again. Been waiting 2 years for a MIBI (I am on Vancouver Island). Hubby has heart disease and got his MIBI test right away.

    How do they know I don’t have problems if they don’t look? Was diagnosed with mild mitral valve issue several years ago – no follow-up. History of rheumatic fever.

    Just seems we females have to fight harder.

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    1. Good grief, Sue! Your hubby had his MIBI right away (nuclear stress test or Myocardial Perfusion Imaging, for my other readers) but you have had to wait TWO YEARS for the same test, in the same place?

      That is inexcusable – unless he was tested under emergency conditions of course. As you correctly ask: How do they know YOU don’t have problems if they don’t look!?!?

      Your comparison with your hubby reminds me of another reader who wrote to me about her experience. She had a heart attack, with textbook symptoms, on a Friday, had one stent implanted, and was told by cardiologists she could return to work on Monday, 2 days later. Her hubby then had an identical type of heart attack one week later, same textbook symptoms, one stent implanted. He was told by cardiologists to take six weeks off work. Both had very similar desk jobs (so avoiding exertion was not a factor in that time off instruction).

      My observation: Men do not have to fight to be believed/taken seriously by doctors. Women do. It is a crazy-making reality. 😦

      Please call your cardiologist’s office and ask to be put on a cancellation waiting list for your MIBI. I sure hope you get that appointment soon. ❤️

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      1. Yes, very true that men do not have to fight for treatment by doctors. In my husband’s case, to be fair I suppose, he has 7 stents implanted and ongoing heart issues, but the MIBI was not done under emergency conditions.

        While in the waiting room at the hospital, I met a woman who had also been waiting a very long time for a MIBI. I have just been given a date for a respiratory test that I have also been waiting two years. Perhaps we should disguise ourselves as men when we enter the doctor’s office!

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        1. Maybe lower our voices, stick on a fake moustache. . . ?!? 🙂

          There are already serious suggestions from some physicians for female heart patients to bring somebody with them to doctor appointments. Emergency physician Dr. Alyson McGregor, for example, warns: “The best thing you can do as a woman is to bring an advocate with you to explain your symptoms.”

          That may be sound advice, but honestly – is this what our healthcare system has come to? Women won’t be appropriately listened to unless there’s a witness beside her (and preferably a husband!?)

          Arrrgh! ❤️

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    1. Hi Pat – actually the registration form includes fields that ask for either Province (in Canada) or State (in the US) so I’m guessing that free registration is open to both countries. See more info about how to register free!

      And yes I believe you’re correct: many researchers and authors report significant gaps in medical education in both Canada and the U.S. (and likely far beyond!)

      Take care. . .❤️

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  2. I am still so frustrated. I had my family doctor, a woman, test my cholesterol every six months. Told all was well. My medical chart shows clearly that EVERYONE on my mother’s side had heart disease. Six years later I had massive heart burn and chest pressure, 6 different meds in 7 weeks.

    One male doctor told me to eat as many Tums as I wanted, stating nobody dies of heart burn. Had a scope and fast tracked to cardiology. I have refractory angina and coronary microvascular heart disease. Severely debilitating.

    Turns out my cholesterol was 6, told I had a freight train coming g right at me for heart attack or stroke. My doctor knew my cholesterol was red-flagged FOR 6 YEARS! When I confronted her, she said, and I quote “My brother-in-law is 24 and his cholesterol is 11, I am not worried”.

    I thought, you are going to kill me! When I talked to her about how severe my angina was, she just shrugged as if I had a splinter. Thank goodness for my cardiologist in Vancouver.

    I have been on LTD for 5 years, my life has changed dramatically. I sometimes wonder, when I have really bad days, which is several times a month, What would have happened had someone said early on that my cholesterol was starting to go up. I am in major pain every single day, I have days where every step feels like my chest will explode. I was stunned when my cardiologist said women’s heart disease was years behind.

    Your book was a life saver for me. Your continued articles are extremely important. Thank you.

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    1. Hi Tracy – thank you for your kind words about my book and this blog. Coincidentally, I too live with your two diagnoses (refractory angina and coronary microvascular disease) – although I had no history of high cholesterol (which just confirms that it’s possible to develop this painful condition with or without the burden of high cholesterol!)

      As you know, I’m not a physician but I think your doctor (I’m guessing you mean your family doctor?) had an unusual reaction to your cholesterol test result of 6 (my understanding is that anything over 4.9 – Canadian measurements – is considered “very high”). And she didn’t seem concerned with an 11 test result in her brother-in-law?!?

      I’m surprised that you weren’t prescribed statins at that time. In my experience, statins are routinely prescribed – even in cases with “normal” cholesterol numbers. (Many docs joke that statins should be added to our drinking water – at least, I THINK they’re joking!)

      I’m wondering if your cardiologist in Vancouver has ever recommended a blood test for something called Lipoprotein(a)? More info on this from the Family Heart Foundation, FYI.

      I’m sorry you’re going through all this, Tracy. Hang in there, and good luck to you . . .❤️

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