by Carolyn Thomas ♥ @HeartSisters
The late Dr. Jessie Gruman was a beloved pioneering activist in the person-centered care movement, the founder of the Center for Advancing Health (CFAH) and the author of the book AfterShock: What to Do When the Doctor Gives You — Or Someone You Love — A Devastating Diagnosis. She once defined the concept of patient engagement as “the actions people take to support their health, and to benefit from their health care” – a simple yet accurate definition. In 2014, I was interviewed for a CFAH report on patient engagement – a document I later described as “interesting, illuminating and frustrating” in my follow-up essay called Patient Engagement (As Described by 31 Non-Patients). I learned back then that how patients view patient engagement and how non-patients view it can be miles apart. And a new paper published this month may help to explain how this gap can affect patients themselves. Continue reading “Patient partners share what can go wrong with patient engagement”
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So I looked up “landmarks lit up with purple”. I learned that lighting a landmark in purple raises awareness of pancreatic cancer – but that’s not all. It’s also the colour that’s supposed to raise awareness of Alzheimer’s Disease, epilepsy, ADHD, domestic violence, lupus, testicular cancer, Crohn’s Disease – and probably many other such causes.
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Heart Sisters 