The “loss of self” in chronic illness is what really hurts

by Carolyn Thomas     @HeartSisters

People living with chronic illness already know that the triple whammy of ongoing physical symptoms, psychological distress and the discomfort of medical procedures can cause us to suffer. But when the late California sociologist Dr. Kathy Charmaz studied chronic illness, she identified an element of suffering that is often dismissed by health care providers.(1)

As she explained in research published in the journal Sociology of Health & Illness, a narrow medicalized view of suffering that’s defined as physical symptoms only ignores or minimizes the broader significance of suffering in a way that may resonate with you if you too live with a chronic illness like heart disease:    

Continue reading “The “loss of self” in chronic illness is what really hurts”

Bereavement eating: does grief cause carb cravings?

by Carolyn Thomas  @HeartSisters

(originally published here shortly after my mother’s death four years ago today on February 21, 2012)

I’ve heard it said that some people experience a loss of appetite during stressful times like a death in the family.  These people are not my relatives. Indeed, in our Ukrainian family tradition, we eat when we’re happy, we eat when we’re upset, and we eat during all possible emotions in between.

Every family gathering surrounding my mother’s death was no exception.

For example, the delicious lunch following her funeral service was a true labour of love prepared by the women of my mother’s church, just as the women of churches, mosques, temples, synagogues and neighbourhoods around the world have been doing for mourners since time began. Continue reading “Bereavement eating: does grief cause carb cravings?”

Depressed? Who, me? Myths and facts about depression after a heart attack

fake-smile

by Carolyn Thomas    @HeartSisters

I have a friend who has a friend who’s been depressed, off and on, for years. During that time, my friend and I have done our fair share of eye-rolling whenever the subject of this person’s depression came up. We wondered why she just couldn’t pull up her socks and quit all this self-absorbed moping around.

Neither my friend nor I had ever had one nanosecond of actually experiencing clinical depression ourselves – which, of course, didn’t stop us from passing judgement.  Continue reading “Depressed? Who, me? Myths and facts about depression after a heart attack”

The “emotional labour” of living with heart disease

by Carolyn Thomas  ♥  @HeartSisters

“My hubby is stuck with me for another 15 years as long as I keep following doctor’s orders.”

“I told my family that I now had a pig valve in my heart – but I was disappointed when the doctor told me I couldn’t keep the bacon.”

“I am determined to outlive my husband – because I want to clean out his garage!”

Heart patients often use humour* like this to distract themselves from the high levels of stress and fear often associated with a life-altering diagnosis like heart disease – such as distressing symptoms, upcoming surgery, diagnostic tests, or even the ongoing awareness of a significantly increased risk of future cardiac events.  So reports Nicholas Lockwood, whose research focused on how heart patients use humour to help them cope with their condition – but ended up showing some surprising results.  Continue reading “The “emotional labour” of living with heart disease”