The “emotional labour” of living with heart disease

1 Nov

by Carolyn Thomas  ♥  @HeartSisters

“My hubby is stuck with me for another 15 years as long as I keep following doctor’s orders.”

“I told my family that I now had a pig valve in my heart – but I was disappointed when the doctor told me I couldn’t keep the bacon.”

“I am determined to outlive my husband – because I want to clean out his garage!”

Heart patients often use humour* like this to distract themselves from the high levels of stress and fear often associated with a life-altering diagnosis like heart disease – such as distressing symptoms, upcoming surgery, diagnostic tests, or even the ongoing awareness of a significantly increased risk of future cardiac events.  So reports Nicholas Lockwood, whose research focused on how heart patients use humour to help them cope with their condition – but ended up showing some surprising results. 

Nicholas is not just your average garden-variety researcher. Here’s how he explained his personal experience to me recently:

“My mother’s own heart attack a few years ago was the primary attraction to this study’s subject. Aside from the prescribed medical treatments, my mother’s use of humour about her condition has comforted family members, fellow patients, her cardiologist, and most importantly, herself.

Nicholas was intrigued when he discovered that this phenomenon was not unique to his mother.  After her cardiac event, his observations of other heart patients he met at the Montana chapter of the organization called Mended Hearts led him to choose humour in enhancing recovery for his University of Montana graduate thesis.

He knew that research already suggests humour has a wide range of known health benefits.

For example, humour may increase the pain tolerance of a patient (physiological), which then in turn can influence the attitude of the patient (psychological).

Nicholas interviewed members of both Mended Hearts and WomenHeart: The National Coalition For Women With Heart Disease who volunteered for his study.  His findings show that self-oriented humour (used to alleviate negative affective states – e.g. “Saturday has a morning?”) can indeed benefit a heart patient’s psychological and social health.

But other-oriented humour (used to distance the patient from companions – e.g. “After I die, you’ll be glad to have the remote control all to yourself!”) seem to negatively predict health.

The first kind – that self-oriented antidotal function of humour – allows the patient to escape the role of the patient (Scholl & Ragan, 2003), so the patient – if even for a short while – no longer identifies as a victim of the disease, but instead identifies as a “normal” healthy individual.  It functions as a coping mechanism, associated with reducing stress, tension, and instilling relief to an overwhelming situation.   (See also: “To Just Be a Person, and Not a Patient Anymore”)

But when humour disturbs the relationship between the patient and their companions, the patient can suffer a psychological and social health decline.

This response is known as emotional labour and in this thesis, it’s particularly compelling.

Originally identified by researchers in 1983, this concept is described as the suppression of feelings to provide a welcoming outward appearance.  (Sound familiar, heart sisters?)

This is widely experienced by heart patients who tell me they often feel compelled to put on their best ‘game face’ so as not to worry their families or friends.  (See also: “Smile, Though Your Heart is Aching”: Is Fake Smiling Unhealthy?)

When patients exhibit this emotional labour, explains Nicholas, the outward expression of emotion is not always genuinely felt – even though this outward expression serves to make other people feel more comfortable.  And when they feel one way, but act another, this can result in more stress, frustration, and even impaired health.

And it’s not limited only to patients. For example, previous research has found that cardiac rehabilitation nurses can exhibit emotional labour when speaking to their heart patients (Barrett et al, 2005). Nurses note that they outwardly express care and compassion even as they are internally focused on the more instrumental tasks at hand. This emotional dissonance can evoke psychological stress.

Heart patients may feel the need to put on a happy face when in fact they actually feel psychologically distressed about their cardiac condition. Nicholas explains:

“This masking of genuine emotions not only increases psychological stress, but it can decrease relationship satisfaction. Whether a person uses humour to entertain their companion, start a conversation, or even enhance their likability, heart patients can be attempting to express a positive, pro-social emotion which is not genuinely felt.”

Hiding this psychological distress can have far-reaching negative outcomes, he adds.  For example, heart patients who perceive poor health can experience grief and depression much like those suffering from bereavement. In fact, grieving widows and heart patients have been found to share similar negative psychological impacts including fear, anxiety, loneliness, and anger (The American Heart Association, 2010).

When I asked Nicholas if any of his results surprised him, he replied:

“The most surprising finding is that not all humour is created equal.

“The effects of negative humour appear to be more potent than positive humour. As such, it could take five positive humorous messages to counteract the health effects of one negative humour message.

“So humour can possibly harm you more than help you if not used in a positive manner.”

Nicholas also found that the introduction of taboo topics through humour might be one possible explanation as to why pro-social humour in heart patients can negatively predict relationship satisfaction. Other researchers had previously found that topics become taboo when partners perceive they can harm the relationship, and are typically avoided because they are seen as risky, inefficient, or futile for the relationship.

But a cardiovascular event is a compelling reason to introduce conversations with loved ones about taboo topics such as fears, death, and the state of the relationship itself.  In fact, humour can be seen as inappropriate when it involves discussion about medical diagnoses, treatment procedures, and illness outcomes.

So humour can function as a social lubricant to introduce taboo topics, which Nicholas explains are, by their very presence, negative weights upon relationship satisfaction. Humour can serve to introduce difficult topics, but re-introducing topics that have become more serious are not related to positive relationship outcomes.

Heart patients clearly use humour to fulfill multiple functions, he adds – not all of which are necessarily positive.

For instance, a patient joking about funeral arrangements, the medical procedure, or his/her companion’s future lifestyle following the patient’s death, negatively predicted relationship satisfaction – which also negatively predicted health.

While recovering following a serious cardiac diagnosis, for example, patients can use humour:

  • to cope with the medical event
  • to socialize with their companion
  • to distance themselves from their companion

 

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*Dear American readers: the spelling of humour reflects how we spell your word “humor” here in Canada and in all other Commonwealth countries!

Q:  How has using humour helped or hurt your experience living with chronic illness?

NOTE FROM CAROLYN:  This post was originally published here on Heart Sisters in September of 2011.  Because I’m starting a new and exciting writing project  – details soon! –  I find myself temporarily with fewer hours in the day when I’m able to write new blog articles here.  I’m hoping that running some updated favourites of mine from the archives of over 600 Heart Sisters posts will keep you informed, inspired and involved each week for a while.  And although I’m not able to write new blog posts for the time being, I do love reading your comments – so please feel free to leave a response here.   Meanwhile, thank you for your amazing support!

See also:

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9 Responses to “The “emotional labour” of living with heart disease”

  1. Jennifer November 3, 2015 at 1:54 pm #

    This topic has me flashing back to the many times (my husband and) I’ve used humour as a coping mechanism. Here are a couple examples.

    After he got the diagnosis of mitral valve prolapse due to stretched and broken “strings” that prevent the valve leaflets from blowing out like a broken umbrella, we went out for tea. People probably stared at us as we sang, “Zing zing pop! Went the strings of my heart…” and giggled at many silly puns. Instead of focusing on the worry, we were relaxing.

    When I was in the CCU with clots on my two artificial heart valves, on a Sunday afternoon there was a crisis with potential for disaster. My room was filled with equipment and people, most of whom had been called in from home. Voices were hushed. I was not allowed to move my head or body. I could just barely see my husband, who had been forced back against the wall. No one was making eye contact with or addressing me. The tension was suffocating.
    After a while I smiled and loudly said, “OK Follks, this was just a drill: everybody did very well. You can all go home now.” Every person in the room burst out laughing. They started including my husband and me in their discussions. The tension was all but gone.
    At the time I thought I joked to break the tension of all these professionals and my husband. Only later did I realize that maybe I was getting tense too.

    Liked by 1 person

    • Carolyn Thomas November 3, 2015 at 9:01 pm #

      Two good examples, Jennifer – how making a well-timed joke can be an effective way to break that unbearable tension. Thanks for sharing them!

      Like

  2. Curious to the Max November 1, 2015 at 5:49 pm #

    Another great post – humor being both help and hindrance.

    I find I use self-deprecating humor so as not to take myself too seriously. I can see where it could be harmful if there was an underlying current of self-pity. I use it to amuse myself and never actually think what the impact is on others.

    Liked by 1 person

    • Carolyn Thomas November 1, 2015 at 7:00 pm #

      Thanks Judy-Judith! I too tend to use self-deprecating humour. And I find it pretty irresistible in others. But I can also see how I sometimes use it – not in self-pity, but to be able to say something with a ring of dark truth in it in a “funny” way that I might be reluctant to say flat out if I were taken seriously. Hmmmmm….

      Liked by 1 person

  3. Jaynie Martz November 1, 2015 at 12:53 pm #

    What a sweet little apple graphic. I love coming here and always rewatch your 4 minute video because it makes me laugh every time.

    While I’ll miss your blogs, I’m VERY pleasantly intrigued with your new writing project and understand your need to ‘disappear for a while’.

    Somehow I never saw this particular post before. It seems an excellent one to vanish upon. Printing it out now…….for my Carolyn files! Enjoy that new endeavor. We’ll miss you here, my Canadian heart sista!

    Liked by 1 person

    • Carolyn Thomas November 1, 2015 at 3:08 pm #

      Thank you Jaynie, my dearest online American pal! Yours was one of the first heart patient voices I met when I first discovered the WomenHeart online support community (you were a couple years ahead of me, I think – and I’ll never forget your telling us about your cardiologist who dismissed your emotional angst post-MI by saying something to you like: “Well, you have nothing to be depressed about!”

      Thanks for noticing the graphic image here; picking out just the right image to go with each article is one of my very favourite parts of blogging. And if I keep re-posting the more obscure (yet still somehow fascinating!) Heart Sisters articles to post here each Sunday morning, it may just keep your attention while I’m officially “away”. Thanks again – I loved reading your comment! ♥

      Like

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