Denial and its deadly role in surviving a heart attack

by Carolyn Thomas      @HeartSisters

Dr. John Leach is one of the world’s leading experts on survival psychology. He likes to tell a story about London’s tragic King’s Cross underground station fire in 1987.(1) As the fire spread, trains kept on arriving in the station, and hurried commuters headed right into the disaster. Officials unwittingly directed passengers onto escalators that carried them straight into the flames. Many commuters followed their routines despite the smoke and fire, almost oblivious to the crush of people trying to escape – some actually in flames! Thirty-one people perished in the King’s Cross fire, and incredibly, the Underground staff never sprayed a single fire extinguisher or spilled a drop of water on the fire.

Dr. Leach, who teaches at Lancaster University, has a name for this phenomenon. It’s called the incredulity response. He explains that people simply don’t believe what they’re seeing. So they go about their business, engaging in what’s known as normalcy bias which is incredibly powerful and sometimes even hazardous. People can act as if everything is okay, and they underestimate the seriousness of danger. Some experts call this analysis paralysis.

What he’s describing is precisely how I felt while undergoing two weeks of increasingly debilitating cardiac symptoms before being finally hospitalized. Although all signs clearly pointed to a heart attack – crushing chest pain, nausea, sweating and pain radiating down my left arm – I seemed fatalistically determined to go about my life acting as if everything was fine, just fine until – when symptoms became truly unbearable – I finally returned to the Emergency Department that had sent me home two weeks earlier with an acid reflux misdiagnosis. Continue reading “Denial and its deadly role in surviving a heart attack”

How we adapt after a heart attack depends on what we believe the diagnosis means

by Carolyn Thomas    ♥    @HeartSisters

There are at least 12 commonly used measurement tools available to the medical profession that look at how patients navigate “the search for meaning in chronic illness”. Clinical tools like the Psychosocial Adjustment To Illness Inventory or the Meaning of Illness Questionnaire have been used on cancer and AIDS patients, as well as others living with chronic disease. But research, including this study, has found that limiting factors in the success of such tools included “the infrequent use of some of the instruments clinically or in research.”

I can’t help but wonder why these readily available assessment tools are not being administered routinely to patients who are freshly diagnosed with heart disease – a serious medical crisis that begs to be examined for its influence on our “psychosocial adjustment” to it. I only learned about these long-established tools two years after my own heart attack, and by then my adjustment period was pretty well done.
Continue reading “How we adapt after a heart attack depends on what we believe the diagnosis means”

In praise of solitude after a heart attack

by Carolyn Thomas  ♥  @HeartSisters


“Others inspire us, information feeds us, practice improves our performance, but we need quiet time to figure things out, to emerge with new discoveries, to unearth original answers.”

This wise counsel is from Dr. Ester Buchholz, author of The Call of Solitude.  She describes solitude like this as “meaningful alone-time” – a powerful need and a necessary tonic in today’s rapid-fire world. Indeed, she maintains that solitude “actually allows us to connect to others in a far richer way”.

She likely didn’t write that as specific advice for those of us living with heart disease, but it struck me when I read her words that, although they are probably very true for all women, they are especially applicable to heart patients.

Indeed, maybe our heart health would actually improve if we were more determined to carve out more ‘me-time’ during the average day.  Continue reading “In praise of solitude after a heart attack”

ChronicBabe: living a kick-ass life despite chronic illness

by Carolyn Thomas    @HeartSisters

I first heard about the work of patient/advocate/blogger Jenni Grover Prokopy (pictured at left*) years ago when, coincidentally, we were each named by Our Bodies Ourselves of Boston as two of their 2009 Women’s Health Heroes. She describes her blog ChronicBabe.com as all about how to live a kick-ass life in spite of living with one or more chronic illnesses. Jenni has an up-close and personal relationship with this topic. First diagnosed with fibromyalgia 20 years ago, Jenni was terrified. She felt completely alone – medical resources were scarce, and none of her peers could relate to what she was going through.

“My life was turned upside down. I went from being a hard-charging, super-athletic chick to feeling so fatigued I couldn’t walk more than a couple blocks. Severe pain kept me from pursuing career opportunities and social activities. And within a couple years, I was diagnosed with other chronic conditions, too. I thought my life was over.”

But it wasn’t over. She explains: “As a young woman with multiple chronic illnesses, I get you.”  Hold onto your hats, Heart Sisters – here’s my interview with the wonderful Jenni Grover Prokopy.      Continue reading “ChronicBabe: living a kick-ass life despite chronic illness”