Failure to refer: why are doctors ignoring cardiac rehab?

by Carolyn Thomas     @HeartSisters

Anne-Marie felt nervous after she was discharged from hospital following triple bypass surgery. She had only her immediate family to help her at home. And as she described:

“I felt like I fell through the cracks. When I left the hospital, my husband was given a sick woman in a wheelchair and a big bag of pills. I had heard about cardiac rehabilitation, so I followed up to see if I could join a program as I thought this could help me get back on my feet.

“But I was told they would get back to me. When they finally did – 15 weeks after my operation – I was already back at work, so couldn’t attend. I wasn’t offered any other alternative.”

When the British Heart Foundation’s National Audit of Cardiac Rehabilitation report was published, a blunt analysis by their auditors concluded that “cardiac rehabilitation remains a Cinderella service.” 

But the grim reality is hardly less Cinderella-ish on this side of the pond. And the reason so many freshly-diagnosed heart patients like Anne-Marie are falling through the cracks lies squarely with the doctors who are failing to refer their patients to cardiac rehab. Continue reading “Failure to refer: why are doctors ignoring cardiac rehab?”

Let’s all play Chronic Illness Bingo!

by Carolyn Thomas    @HeartSisters

So far, I’ve heard well-meaning but uninformed people say just about every one of these “helpful” things – so I could pretty darned quickly fill out my own Bingo card. How about you?
Continue reading “Let’s all play Chronic Illness Bingo!”

Little social support: a big gap for younger heart patients

by Carolyn Thomas  ♥ @HeartSisters

I used to offer to sell to my non-Ukrainian friends the guest list from our big Ukrainian wedding. Imagine 450 names, all of whom were raised in a wonderful Slavic culture that knows what to do when hard times strike. No sooner do they hear of a friend or neighbour’s problems (like a family tragedy or a serious health crisis) – and they start pitching in to help. Such support often starts with baking, cooking and getting the casserole dishes lined up on the kitchen counter for imminent delivery to the freshly-stricken person’s fridge. Researchers know that having social support like this from others following a heart attack (or any serious health crisis) helps not only with physical recuperation, but also with emotional and psychological recovery, too. Yet virtually all published health research on the important quality-of-life issue of social support so far has been done on men.

White men.

White men, almost all of them seniors.

So lots of old white men studied, but very few women – and very few patients of either gender who were younger than 55 years of age.  But the VIRGO study published in the Journal of the American Heart Association finally attempts to address this gap.(1)  . . .
Continue reading “Little social support: a big gap for younger heart patients”

Feisty advice to patients: “Get down off your cross!”

by Carolyn Thomas  @HeartSisters

I’ve never met Debra Jarvis, but we’re practically neighbours, separated only by a few measly miles of Pacific Ocean coastline and an international border. She’s a writer, breast cancer survivor, hospital chaplain, and ordained United Church minister from Seattle – a city I can see from the shore here in Victoria. Oh, wait. That’s the city of Port Angeles, Washington. Still, I can see Seattle in the Sarah Palin sense of the word “see” . . .

I first encountered the “Irreverent Reverend” Jarvis watching her poignantly funny presentation at TEDMED 2014.  And like so much in life, when smart people tell good stories, their messages can be meaningful no matter what they’re talking about.     Continue reading “Feisty advice to patients: “Get down off your cross!””