Coping with your partner’s ICD and heart disease

~ Carolyn Thomas ~ 10 Comments

by Carolyn Thomas

I could make out the rounded corners of the implanted device stretching through the thin white skin of Ann’s chest. I was shocked to see such a young, healthy-looking woman among our Heart To Heart survivors’ support group that night (we were vastly outnumbered by old men and their wives).  Ann (not her real name) was just 24 years old; her younger sister had recently died of sudden cardiac arrest due to a terrifying heart condition called Long QT Syndrome – a heart arrhythmia usually affecting otherwise healthy teenagers and young adults – whose first symptom is sudden loss of consciousness and, in far too many cases, death.

Because there is often a family connection, all of the surviving siblings in Ann’s family had to be tested to see if they too shared this deadly diagnosis. Her brother was fine, but Ann tested positive for Long QT, and so was immediately implanted with a life-saving cardiac device called an ICD.  Continue reading “Coping with your partner’s ICD and heart disease” →

How a heart attack turned me into an “information flâneuse”

~ Carolyn Thomas ~ 9 Comments

by Carolyn Thomas   ♥   @HeartSisters

Before surviving a heart attack in 2008, I never gave my heart more than a passing thought (except maybe when slogging up that brutal Quadra Street hill with my running group on our way back to the Y).  But after my heart attack and accompanying shock, disbelief, grief and anger, I became just a wee bit obsessed. I threw myself into boning up on women’s symptoms, risk factors, diagnostics, treatments and emerging cardiac research as if I were cramming for some kind of imminent cardiology midterm.

I applied to attend the annual WomenHeart Science & Leadership Symposium for Women With Heart Disease at Mayo Clinic – and then became the first Canadian ever accepted for this patient advocacy training.  I subscribed to daily cardiology bulletins and heart institutes’ news feeds. I launched this blog, Heart Sisters, and have written 500+ articles here so far. I’ve given presentations about women’s heart health to thousands of people. And I applied for media accreditation so I could interview cardiac researchers attending the 64th annual Canadian Cardiovascular Congress (the first of many I would attend over the years) – where I was shocked to find that only four of the 700 scientific papers presented at this conference were even remotely focused on women’s heart disease.  I find this subject both astonishing and compelling, and am almost insufferably preoccupied with All Things Cardiac.

Just recently, I came across a term that seems to capture the kind of person I’ve become, post-heart attack: an “information flâneur”.   Or, more appropriately, a flâneuse, the female version of this affliction. Continue reading “How a heart attack turned me into an “information flâneuse”” →

The unforgettable diagnosis: “You’re having a heart attack!”

~ Carolyn Thomas ~ 2 Comments

by Carolyn Thomas   ♥  @HeartSisters

Jennifer Donelan was a 36-year old television news reporter for ABC News 7 in Washington, DC, covering a dramatic story one day about a local 4-month old baby girl who had been found in her crib, unresponsive. After her live shot on the 5 o’clock newscast, Jennifer was waiting near her car when she started to feel a very strange pain in her chest. We pick up her dramatic story there, as told in Jennifer’s own words:

“I remember looking at my car and thinking: ‘I need to go home and lay down.’ Then the pain started to worsen. I took a few steps and my left arm went numb.  Continue reading “The unforgettable diagnosis: “You’re having a heart attack!”” →

Coronary Microvascular Disease: a “trash basket diagnosis”?

~ Carolyn Thomas ~ 34 Comments

by Carolyn Thomas  ♥ @HeartSisters

Dr. Juan Carlos Kaski, Head of the Cardiovascular Sciences Research Centre, St. George’s University of London in the U.K., explains an unusual cardiac diagnosis that I happen to share: Inoperable Coronary Microvascular Disease (MVD).

When I was at Mayo Clinic five months after my heart attack, cardiologists there referred to MVD as a “trash basket diagnosis” – not because the condition doesn’t exist, but because this disorder of the tiniest blood vessels in the heart is so often missed entirely. A correct diagnosis usually happens only after all other possible diagnoses are thrown out. It’s far more common in women and in people who have diabetes. It’s treatable, but can be very difficult to detect. Continue reading “Coronary Microvascular Disease: a “trash basket diagnosis”?” →