“Refrain from operating a chainsaw after your cardiac procedure”

9 Apr
As I love to keep saying, my Heart Sisters blog readers are the smartest and the funniest and the most resilient women out there – and remember that most of them are living with various levels of heart disease symptoms all while busy being smart and funny and resilient.
 
One such reader named Jennifer, who also lives with a thyroid condition called Graves Disease, wrote the comment below in response to my blog post about women’s heart clinics. Her hospital experience with the cardiology gender gap is maddeningly common (and yet another powerful argument for opening a women’s heart clinic in every hospital).

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When the woman who won’t call 911 is your mother

2 Apr

by Carolyn Thomas    @HeartSisters

Cardiologists know that, when it comes to seeking emergency medical help while experiencing alarming cardiac symptoms, women can be surprisingly reluctant to call 911. As I’ve written about here, here and here, this is a puzzling phenomenon we call treatment-seeking delay behaviour. It turns out that some cardiologists have to worry not only about patients like this, but about their own mothers. Continue reading

Women’s heart disease: is it underdiagnosed, or misdiagnosed?

26 Mar

by Carolyn Thomas    @HeartSisters

Do you know the difference between a medical condition that’s underdiagnosed, and one that’s misdiagnosed? I thought you’d never ask. . .  Underdiagnosis is a failure to recognize or correctly diagnose a disease or condition, especially in a significant proportion of patients, as in: “Heart disease in women is still being underdiagnosed compared to our male counterparts.”(1) But misdiagnosis is an incorrect, partial or delayed diagnosis of one individual’s illness or other medical problem, as in: “I left the Emergency Department with a misdiagnosis of acid reflux despite my textbook heart attack symptoms of central chest pain, nausea, sweating and pain down my left arm.”

The trouble is this: the more that misdiagnosis happens to individual women, one after another, the more likely we are to continue seeing underdiagnosis of women heart patients as a whole. Thank you to these heart patients who shared their own experiences of surviving a misdiagnosis: Continue reading

My medical diagnosis means more to me than to you

12 Mar

by Carolyn Thomas   @HeartSisters

As a person who lives with and writes about coronary microvascular disease (MVD), I feel lucky that my family doctor, my cardiologist and my pain specialist are all believers. It’s like the trifecta of diagnostic wins for a heart patient! I say that because one of my blog readers, after asking her physician if her puzzling cardiac symptoms might be due to MVD, was told:

“I don’t believe in coronary microvascular disease.”

I guess it’s time to remind such physicians that we’re not talking about Santa Claus or the Tooth Fairy here. Continue reading

Just living life. No awesomeness required.

5 Mar

I’m always chuffed (as my Brit friends would say) to run into an patient essay that’s so good, I wish I’d written it – one that captures the essence of what I’ve been thinking all along but somehow haven’t quite gathered those thoughts as succinctly. Although Barbara Westfall wrote this for her blog Pilgrim125 as a woman living with Stage IV breast cancer, she tells a familiar story that spoke to me as a heart patient, too.

She writes about those magical moments when we just try to live life as if we didn’t have a life-altering medical condition, thank you very much, no matter what our diagnosis. With her kind permission, I’m sharing it with you. Thank you, Barbara!

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