Being sick doesn’t excuse being a jerk

7 Aug

by Carolyn Thomas    @HeartSisters

angry-mobI watched a man recently telling the story of how he’d been “fired” by his cardiologist. All he had done to deserve this, he explained, was to use the f-word during a confrontation with the office receptionist. He complained that he’d been subsequently fired after this receptionist reported his outburst to her boss. He specifically blamed the terms of a recently implemented anti-bullying policy at the medical facility. Because of this receptionist and this anti-bullying policy, he was now stuck in the unenviable state of being without a cardiologist.

No. No. And NO! It was his own decision to behave badly that accomplished that result for him. Not surprisingly, physicians, nurses, and other healthcare staff are fed up with bullies like That Guy, who act as if being a patient means you get a free pass to be a jerk.

It does not mean that at all. Continue reading

How these unique classes help to improve your Cardiac IQ

31 Jul

by Carolyn Thomas    @HeartSisters

by Volkan OlmezWhen I’m not noodling away here on Heart Sisters articles and other writing projects, or doing presentations on women’s heart health, or playing with the world’s sweetest, happiest and smartest grandbaby, one of the activities close to my heart involves a local non-profit agency called Island Heart To Heart. In 2008, as a freshly-diagnosed heart attack survivor – overwhelmed and frightened – I learned so much from the assorted guest speakers at their weekly classes for heart patients! Eventually, I became further involved with this unique organization – first volunteering with patients and family members on the cardiac ward, then as a member of their steering committee, and most recently as one of the facilitators who help to run these ongoing cardiac education classes throughout the year.

With her kind permission, I’m running this guest post by Thelma Fayle (a recent Heart To Heart “graduate”) which sums up beautifully three compelling stories:

  • the awful night her partner Daryl suffered a heart attack
  • what she and Daryl experienced week by week at their seven Heart To Heart classes
  • a moving tribute to the visionary young nurse who started Heart To Heart as a pilot project 29 years ago to help newly-diagnosed heart patients like her own Dad

Thank you so much for this, Thelma!

Continue reading

Turning “Why me?” into “Why not me?”

24 Jul

3heartsby Carolyn Thomas    @HeartSisters

Cathy Aumack-Bandy of Florida wrote this open letter in response to another heart patient’s question to her last month. I’m running this compelling essay here with her kind permission. Hold onto your hats . . .

When first diagnosed with cardiac problems, many people ask, “Who Me? No…” My version of the question “Who me?” was “Why Me?” – until the day my Mom asked, “Why NOT you?”  I hadn’t thought of it that way.

I went into the hospital because of a bout with “asthmatic bronchitis” that I just could not shake. I never imagined it might be a heart problem (neither I guess did my former primary care physician). I’d had a full cardiac work-up in October and been declared “heart healthy.”

Talk about shock… Who knew?

Just two days after my admission, a doctor (I didn’t know him at the time, or that he was a cardiologist) came into my room and, totally ignoring me in the bed, told my husband Gary that my heart was barely functioning and that without a transplant, I would not make three months.  Continue reading

1 in 5 have this genetic risk factor for heart disease – but don’t know it

17 Jul

by Carolyn Thomas    @HeartSisters

Sandra Revill Tremulis was a healthy, fit woman who had a heart attack at the age of 39 despite an apparent lack of any cardiac risk factors. She’d never smoked, had a healthy diet, normal weight, normal cholesterol/blood pressure – and had run a marathon just the year before. So Sandra’s doctor ordered advanced blood tests and discovered that she had inherited a genetic abnormality that causes early heart disease. One in five people carry this gene, yet most are completely unaware that they do.

Continue reading

No blockages: Living with non-obstructive heart disease

10 Jul

by Carolyn Thomas    @HeartSisters

Annette PompaAnnette Pompa of Pennsylvania lives with a cardiac diagnosis I’d never even heard of until I, too, was diagnosed with it several months after surviving a heart attack. It’s called Coronary Microvascular Disease (MVD). Unlike the classic Hollywood Heart Attack I’d initially experienced – which is typically caused by a significantly blocked major coronary artery – those of us diagnosed with MVD or coronary spasm disorders have few if any detectable blockages obstructing flow in the major blood vessels feeding the heart muscle. Yet we can experience the same distressing symptoms of a heart attack. Annette is a former art teacher who was barely 41 years old when MVD “came barging into my life”, as she explains. With her permission, I’m reprinting this transcript of an American Heart Association presentation that Annette gave recently about living with a non-obstructive heart condition.


“This is my story. I represent an often misunderstood population living with a very different type of heart disease. Sadly, there are many more like me with MVD who are simply not being recognized – and indeed even dismissed. Symptoms often persist even without any visible blockage or reason for the angina, shortness of breath and fatigue which often accompany the condition. It is crazy, right? Here I was seemingly healthy – yet ended up battling heart disease.  Continue reading