Chronic heart failure: the true heartache of living with “FAILURE”

by Carolyn Thomas     ♥    @HeartSisters 

 A small Australian study published this month explores two elements that seem pretty darned important to patients and their families following a diagnosis of chronic heart failure (CHF) – yet may often appear to be minimized or even dismissed by healthcare professionals.  In this study, participants were asked to report their lived experience through two key themes:  1. Heartache and 2. Living with Failure.             .
Continue reading “Chronic heart failure: the true heartache of living with “FAILURE””

Heart FAILURE vs. heart FUNCTION

by Carolyn Thomas     @HeartSisters   

A number of cardiologists seem to be revisiting the warnings of their late colleague Dr. Bernard Lown, who often cautioned physicians against using words that hurt – specifically, the name heart FAILURE * (what he termed “doom forecasting”).  Imagine being a patient hearing for the first time the words, “You have heart FAILURE.”  A terrifying – and worse, often inaccurate – name.  I’ve been told that changing the name of this condition would be impossible. But a recent editorial in the Journal of the American College of Cardiology has suddenly offered a glimmer of hope. 

Continue reading “Heart FAILURE vs. heart FUNCTION”

Is it finally time to change the name ‘heart FAILURE’?

by Carolyn Thomas      @HeartSisters

When McMaster University cardiologist Dr. Harriette Van Spall asked her Twitter followers recently to offer topic suggestions for the upcoming Heart Failure Summit, I responded with a suggestion of my own:

“Please please please can we STOP calling this condition heart FAILURE?”    .

Continue reading “Is it finally time to change the name ‘heart FAILURE’?”

Would you drive your car if its brakes were “failing”?

by Carolyn Thomas      @HeartSisters

Imagine your mechanic telling you that your brakes are failing. Would you voluntarily get behind the wheel of that car – and then happily drive it home? Of course you wouldn’t.  Yet right now, as you are reading these words, doctors around the world in a medical office or hospital clinic somewhere out there are casually saying out loud the words “HEART FAILURE” to diagnose people who will leave that place feeling scared to death.   .   Continue reading “Would you drive your car if its brakes were “failing”?”