Invisible Illness Week – seeing what others can’t see

by Carolyn Thomas    @HeartSisters

Once a week, I show up bright and early for my 7 a.m. Toastmasters meeting, just as I have been doing every week for 28 years. (I did miss several meetings after being freshly diagnosed with a heart attack in 2008 – the year that, sadly, I lost the coveted Rise and Shine Attendance Award to my pal and archrival, Jim). But because early morning is almost always my best time of day (e.g. minimal cardiac symptoms), if you met me for the first time only during that very early weekly meeting, you would not guess that I live with something called inoperable coronary microvascular disease (MVD). 

I don’t wear a neck brace or leg cast or any other visible sign that something is wrong. Because this debilitating heart condition is invisible, I often look and sound relatively “normal”.  And if you’re lucky enough to live with healthy privilege, it can be almost impossible to understand what having an invisible chronic illness is like. Continue reading “Invisible Illness Week – seeing what others can’t see”

It’s Invisible Illness Awareness Week!

Dearest heart sisters,

If you live with an invisible illness (as almost all heart patients do), this is your week, no matter what your diagnosis.  I encourage you to visit the Invisible Illness Week site, all about those of us living with serious health conditions that nobody else can see. It’s an annual educational campaign about how often illness is utterly invisible to others, how to be sensitive to those living with these challenges, and how to learn from their unique experiences.
Continue reading “It’s Invisible Illness Awareness Week!”