When an illness narrative isn’t just about illness

by Carolyn Thomas    @HeartSisters     September 2, 2018

The ink was barely dry on the book contract I’d signed with Johns Hopkins University Press on the morning I tuned in, as I like to do every weekend, to Michael Enright’s Sunday Edition show on CBC Radio.

Michael’s guest that morning couldn’t have been more appropriate, given the project I was just beginning. A physician-turned-author named Dr. Suzanne Koven was talking about people who write first-person accounts of their health crises, books that Michael indelicately referred to as “sick lit“.(1)  . Illness, Michael began, is always more interesting to the ill person than to the reader. But Dr. Koven quickly interjected.  Continue reading “When an illness narrative isn’t just about illness”

Patient bloggers at healthcare conferences: ‘real’ journalists?

Like some of my most deliciously niggling inspirations these days, this one started on Twitter. Patient advocate, speaker and a Stanford University Medicine X ePatient Scholar Britt Johnson (who blogs at The Hurt Blogger) tweeted this:
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To which patient advocate, speaker (and also a Stanford University Medicine X ePatient Scholar Carly Medosch who blogs at Chronic Carly) responded:
 
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It was Carly’s observation that caused one of my eyebrows to flick skyward, unbidden.

Continue reading “Patient bloggers at healthcare conferences: ‘real’ journalists?”