Patient “stories” vs. medical “reports”: The Patient Experience Library

by Carolyn Thomas    ♥   @HeartSisters

If a doctor speaks up when something goes terribly wrong at work, it’s called an incident report, but when a patient speaks up when something’s gone wrong, it’s a complaint. Words do matter, and listening to what patients are telling their doctors is important. The incident report is an example of what healthcare professionals will accept as admissable evidence based on their learned experience, while the patient complaint is too often seen as merely anecdotal, based only on lived experience – so it’s considered to be inadmissable evidence.  Continue reading “Patient “stories” vs. medical “reports”: The Patient Experience Library”

“The doctors want my symptoms but not my stories”

by Carolyn Thomas     @HeartSisters

Marilyn Gardner, in her 2014 book called “Between Worlds: Essays on Culture and Belonging“) wrote about a compelling conversation she once had:

Yet our physicians aren’t trained to embrace our stories, but instead to ask right away, “What brings you here today?” to kick-start a brief Q&A that can most efficiently solve the diagnostic mystery sitting across from them.      .     .    Continue reading ““The doctors want my symptoms but not my stories””