Which one’s right? Eight ways that patients and families can view heart disease

30 Aug

by Carolyn Thomas  @HeartSisters

An interesting phenomenon that I used to observe in bereaved family members during my years working in hospice palliative care is the range of personal grieving styles, and the resulting conflicts over the “right way” to grieve.    

Let’s take the example of two grown daughters whose mother has died. One daughter may be emotionally incapacitated and fragile, needing to tearfully tell the story of her mother’s illness and death over and over again to help herself deal with the loss.

But another daughter copes with her own sorrow by trying to make life as “normal” as possible – throwing herself into tasks like organizing the funeral, writing the obituary, going back to work right away, and keeping very busy.

She may feel impatient and frustrated with her emotional sister, urging her:

“Pull yourself together! Mum would not want you to be turning into such a weepy mess like this!”

The first daughter, meanwhile, might respond in horror:

“Look at you! You’ve gone back to work, you’re throwing dinner parties and making vacation plans. Don’t you even care that our mother has died?”

Each sister is convinced that the other is doing it wrong.

The same response to differing coping perspectives can happen in families when heart disease strikes one member.    

After meeting countless other heart attack survivors who approach their new diagnoses in very different ways, I’m struck by the similarity with those grieving sisters.

For example, I’ve met survivors who decide not to sign up for cardiac rehabilitation even after their doctors’ referral, survivors who continue to smoke despite knowing the very clear risks to their damaged hearts, survivors who march back to work as if nothing’s happened.

Dr. Wayne Sotile, in his book Heart Illness and Intimacy: How Caring Relationships Aid Recovery, explains that few events in life create as much of a scramble in how we function as heart disease in the family does. And family members of a heart patient can get pushed to the point of losing the organization that holds them all together.

He lists eight ways – each different but each quite understandable – that patients and their family members might view a significant heart disease diagnosis, based on coping strategy assessment tools from the late Dr. Zbigniew Lipowski of the University of Toronto:

1.  as a challenge – a life situation that consists of multiple tasks that must be mastered

2.  as an enemy – like an invasion of harmful forces that have entered your body and your life

3.  as a punishment being delivered justly or unjustly for your lack of perfection

4.  as a sign of weakness

5.  as a relief from your typical life stresses

6.  as a strategy to use in trying to get more nurturing attention from the family and the rest of the world

7.  as an irreparable loss of valuable aspects of life

8.  as an opportunity for growth and development

Dr. Sotile warns that these perspectives, which can vary from day to day for the same person, can also cause serious conflicts within the heart patient’s family.

For example, one family member might view this illness as a challenge to be aggressively overcome, while another might insist that it’s a reason for the patient to finally slow down and be less goal-oriented.

So the first believes that working extra hard in cardiac rehabilitation will absolutely change the patient’s cardiac risk factors.  The second, however, defines success in cardiac rehab as finally learning to take it easy and not be so driven all the time, including the need to change the patient’s cardiac risk factors.

It’s important to remember that most coping skills and worldviews are based on personality tendencies that have been practised for decades before any traumatic event even happens. There isn’t a “right” or “wrong” way to cope. Each perspective may make perfect sense to that person, even as it mystifies or infuriates others in the family.

Dr. Sotile’s advice for heart patients and their family members who feel stuck in differing views of the meaning of heart illness and its impact:

“Honestly evaluate whether this disagreement is a symptom of unresolved problems in other areas of family relationships.”

Find out more about personality and coping with heart disease from cardiac psychologist Dr. Wayne Sotile.

See also:

4 Responses to “Which one’s right? Eight ways that patients and families can view heart disease”

  1. RWT September 28, 2011 at 2:30 am #

    Extremely useful info here, reminds us that there are many possible ways to respond to any life trauma for both patients and their loved ones. There is no “right” way, as I’ve been trying to tell my family since my own open heart surgery (CABGx3). I love your blog, pls keep up the great work here. I know it’s meant for women, but as a man, I get so much out of what you write here, too. Thankyou.

    Like

  2. Kihei Kim September 11, 2010 at 12:47 am #

    Well, reviewing this list of eight, I can quickly see that my husband and I easily fit all 8 – and more, depends on the activity, time of day, stress, weather, you name it. It’s been an education for me since his heart attack and open heart surgery. I expected that this would be just like a “typical” hospital stay – you go in, they fix you, you go home, all is back to normal again.

    BUT this is not so with heart disease and doctors do NOT warn you of this when they discharge heart patients home, it’s only then that the patient AND the family suddenly have to face the reality of what has just happened, and the terror that it may happen again at any moment, the “new normal” as you described it in another article here. In many ways, I feel that it’s equally stressful for me and the children because my hubby keeps a lot inside so he doesn’t worry us any more than we already are, but the rest of us live on HIGH ALERT at all times. Exhausting.

    Once you or your loved ones have experienced a heart attack, family life is NEVER the same, no matter what all those “experts” say, its hard to describe to anybody who has never experienced it.

    Your website is a godsend, everything you write about somehow seems exactly written for my husband and our own family. How do you do it? Well, we know how – you’re a survivor yourself, I now believe that only other heart attack survivors can possibly “get it”. And thank you for reminding us how different people cope differently. Because of your previous articles here on depression, we were able to easily identify my husband’s post-heart attack depression and anxiety symptoms even before he could. His own doctor just laughed off these symptoms saying he was “just bored from recovering at home and should get a new hobby”. Seriously. The doctor kept saying things like the heart attack was NOT “too serious”. What a stupid thing to say, anytime they crack open your chest for open heart surgery it is damned serious.

    THANK YOU a thousand times for your good work here, we are new subscribers and look forward to EVERY NEW ARTICLE.

    Mahalo,
    K.W. in Kihei

    Like

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