Exhaustion: the ‘leaky emotion’ of chronic illness

by Carolyn Thomas    @HeartSisters

Like most of you, I’ve experienced my fair share of garden variety pain over the years (caused, in my case, by things like a ruptured appendix, broken bones, knee surgery, or popping out two babies the old-fashioned way).

But none of those even came close to the chronic pain of refractory angina caused by my current diagnosis of inoperable coronary microvascular disease (MVD).  The chest pain caused by this disorder of the heart’s smallest blood vessels is episodic, intense, frightening and resembles what my “widow maker” heart attack symptoms felt like in 2008. Except this kind of pain happens almost every day.  It’s generally well-managed most days by meds (including my trusty nitro spray) and the non-drug, non-invasive TENS therapy recommended by my cardiologist as well as my pain specialist at our Regional Pain Clinic.  But sometimes, it’s alarming enough that I clutch my chest and wonder:

“Is this something? Is it nothing? Should I call 911? Is today the day I’m having another heart attack?”

As you already know if you live with chronic pain like this, pain can literally change your personality. If it’s chest pain, it can also make you feel anxious and worried in a way that having pain from knee surgery never can. No wonder pain is so utterly exhausting!
Continue reading “Exhaustion: the ‘leaky emotion’ of chronic illness”

Oneupmanship: you think YOU have pain?

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by Carolyn Thomas    @HeartSisters

Have you ever been in the middle of telling somebody something important to you, only to be interrupted because what you’ve just said has reminded them of their own (far more fascinating!) story that clearly outshines yours? It’s a scene-stealing moment of oneupmanship. Or as author Stephen Covey once lamented:

“Most people do not listen with the intent to understand; they listen with the intent to reply.”

Oneupmanship is perhaps most memorably represented in the iconic Monty Python Four Yorkshiremen skit (pictured above) in which the lads sit around and argue about which one of them had endured the worst poverty in childhood. “A house? You were lucky to live in a house! We lived in one room, all 26 of us!”
Continue reading “Oneupmanship: you think YOU have pain?”

I don’t want to talk about it…

by Carolyn Thomas    @HeartSisters

When you get together with your girlfriends, are there any conversation topics that you believe are not open for discussion? Any that are off-limits? Any personal stories that you think are, well, just too personal to talk about to those women closest to you?

No, me neither.

Nowhere is this communication openness more visible than with our health. We generally like to share our medical news, updates on that medical news, and our opinions about each others’ medical news.  Health topics appear increasingly popular as we age (and thus have way more medical news to discuss).  It’s what my friend Dave likes to call “the organ recital”.  But when it comes to serious health conditions, do you ever wonder if all that sharing is necessarily a good thing?  Continue reading “I don’t want to talk about it…”

No, really – patient education that’s actually useful!

by Carolyn Thomas  ♥  @HeartSisters

I think I’ve seen just about every “healthy lifestyle” informational brochure out there. You’ve seen them, too:  Eat better! Lose Weight! Quit Smoking! Get More Exercise! BlahBlahBlah!  None that I’ve found so far, however, mention anything that we don’t already know. Behaviour change is notoriously challenging – otherwise we’d all be doing it already.  It seems to me that the issue is not so much about raising awareness of something that isn’t well understood (Really? Smoking is bad for us?) but more about presenting information in a way that seeks to somehow meaningfully interact with the reader.

In my eternal quest for good solid take-home resources to hand out to the audiences at my women’s heart health presentations, I happened upon one – at last! – that caught my eye.  It’s called Living Well, simply sub-titled “tips for health and happiness”.
Continue reading “No, really – patient education that’s actually useful!”