First we had peer review – and now patient review!

by Carolyn Thomas    @HeartSisters

You already know that research papers submitted for publication in medical journals are first subject to peer review before a final decision to accept the paper is made. Peer review is a time-honoured way to evaluate scientific or academic papers by others working in the same field.  But The British Medical Journal, the world’s oldest, has launched a unique initiative to include patient review of submitted studies as well. Here’s how BMJ explains this project:
Continue reading “First we had peer review – and now patient review!”

“You’ve done the right thing by coming here today”

by Carolyn Thomas  ♥  @HeartSisters

One of the most upsetting things about being misdiagnosed with acid reflux in mid-heart attack was the sense of pervasive humiliation I felt as I was sent home from the Emergency Department that morning. I had just wasted the very valuable time of very busy doctors and nurses working in emergency medicine. I left the hospital feeling apologetic and embarrassed because I had made a big fuss over NOTHING.

And such embarrassment also made me second-guess my own ability to assess when it’s even worth seeking medical help. Worse, feeling embarrassed kept me from returning to Emergency when I continued to be stricken with identical symptoms: central chest pain, nausea, sweating and pain down my left arm. But hey! At least I knew it wasn’t my heart, right?

I now ask those in my women’s heart health presentation audiences to imagine what I would have done had my textbook cardiac symptoms been happening to my daughter Larissa instead of to me. General audience opinion is that I, like most Mums, would have likely been screaming blue murder, insisting on appropriate and timely care for my child. But as U.K. physician Dr. Jonathon Tomlinson pointed out recently, even parents can feel insecure about their own ability to know what is a real medical emergency – and what is not – when it comes to their children. For example:     Continue reading ““You’ve done the right thing by coming here today””

Feisty advice to patients: “Get down off your cross!”

by Carolyn Thomas  @HeartSisters

I’ve never met Debra Jarvis, but we’re practically neighbours, separated only by a few measly miles of Pacific Ocean coastline and an international border. She’s a writer, breast cancer survivor, hospital chaplain, and ordained United Church minister from Seattle – a city I can see from the shore here in Victoria. Oh, wait. That’s the city of Port Angeles, Washington. Still, I can see Seattle in the Sarah Palin sense of the word “see” . . .

I first encountered the “Irreverent Reverend” Jarvis watching her poignantly funny presentation at TEDMED 2014.  And like so much in life, when smart people tell good stories, their messages can be meaningful no matter what they’re talking about.     Continue reading “Feisty advice to patients: “Get down off your cross!””

How intense grief increases your cardiac risk

by Carolyn Thomas    @HeartSisters

Emelyn_Story_Tomba_(Cimitero_Acattolico_Roma)My Dad died young in 1983, at just 62 years of age. His was the first significantly meaningful death I’d ever been exposed to, and my personal introduction to the concept of grief and bereavement in our family. My father died of metastatic cancer, lying in a general med-surg hospital ward bed, misdiagnosed with pneumonia until five days before his death, cared for (and I use those two words charitably) by a physician who was so profoundly ignorant about end-of-life care that he actually said these words to my distraught mother, with a straight face:

“We are reluctant to give him opioids for pain because they are addictive.”

This pronouncement was made on the morning of the same day my father died. But hey! – at least Dad wasn’t an addict when he took his last breath nine hours later.    Continue reading “How intense grief increases your cardiac risk”