Confessions of a non-compliant patient

by Carolyn Thomas @HeartSisters

.

Consider this scenario, dear reader:  I’m lying in bed one Sunday evening, settled in to watch 60 Minutes for the next hour. But this Sunday is different from any other Sunday because I’ve had three new things to deal with during the past week that are utterly separate from my laundry list of daily cardiac concerns:

  1. I’ve been having physiotherapy three times a week because I twisted my right knee (same one I had knee surgery on seven years ago).
  2. I’m using a new prescription ointment for a pesky patch of psoriasis on my left elbow.
  3. I’m wearing a brand new acrylic mouth guard to bed every night that my dentist has just made for me to help treat a longstanding jaw alignment problem.

So. Here I am lying in bed that Sunday evening as our story unfolds . . . Continue reading “Confessions of a non-compliant patient”

Is your doctor paying attention?

by Carolyn Thomas    @HeartSisters

When Mayo Clinic’s Dr. Mary O’Connor published her compelling essay called The Woman Patient: Is Her Voice Heard?“, she raised some frightening questions, particularly for those of us carrying the XX chromosomes.  Examples of what she calls the medical profession’s unconscious bias” against female patients include:

  • women are 22 times less likely to be referred for knee replacement surgery compared to men presenting with the same symptoms and diagnoses
  • girls on pediatric kidney transplant lists are 22% less likely to get a new kidney compared to boys
  • women in their 50s and younger are seven times more likely to be misdiagnosed and sent home from Emergency compared to their male counterparts of the same age presenting with comparable heart attack symptoms(1)

But perhaps the most disturbing lesson was the pervasive sense that somehow docs are just not getting it, and worse, that this “unconscious bias” is affecting medical decision-making – and even doctors’ ability to pay attention. Continue reading “Is your doctor paying attention?”

Why we ignore serious symptoms

by Carolyn Thomas    @HeartSisters

Before my heart attack, I spent almost two decades as a distance runner. Many of the elite marathoners I knew (and certainly the one I happened to live with!) obsessed mercilessly on every detail of their last race, but not so much on the daily joys of running itself. It was the destination and not the journey that seemed to matter to so many of them, especially during race season.

The members of my own running group could never be accused of being elite runners. Our motto was: “No course too short, no pace too slow.”  But over those decades, whenever my group was in training for a specific road race looming on the calendar, I could watch myself being sucked into that seductive groupthink trap of running even when I was sick, running when I was injured, running because it’s Tuesday and Tuesdays meant hill work, running with an ankle or knee taped and hurting.

Getting to a more important destination (the race) became bigger than paying attention to those less important messages (don’t run today). In fact, I learned from other runners to deliberately mistrust whatever my lazy-ass self was trying to say.  I learned to ignore the messages my own body was sending me. Continue reading “Why we ignore serious symptoms”

When thyroid problems masquerade as heart disease

by Carolyn Thomas    @HeartSisters

I love a medical mystery that gets solved by a patient, don’t you? In May 2009, one of my regular readers – known to me and other readers here simply as JetGirl experienced what she calls “classic heart attack symptoms” of very sudden onset, and sought help immediately at the Emergency Department of a Los Angeles hospital.  The 45-year old former airline pilot was released from hospital after a week’s stay in the Coronary Care Unit with a vague cardiac diagnosis of ischemia*.

Six months later, JetGirl once again experienced more cardiac symptoms including “massive chest pain” and shortness of breath.  This time, nothing was found.    Continue reading “When thyroid problems masquerade as heart disease”