Tag: cardiac pacemaker

Hello pacers! A little Q&A about your pacemaker

~ Carolyn Thomas ~ 158 Comments

by Carolyn Thomas  ♥  @HeartSisters

Here at Heart Sisters World Headquarters, I’m often contacted by readers with impertinent questions like: “Why don’t you ever write about ______?” (insert your own specific diagnosis here). One in particular was a 2015 reader question that read: “Why don’t you ever write about congenital heart defects?” On that particular morning, I was feeling tired, sick and “grumpy” (as our little Everly Rose calls every feeling she has that’s not happy). I wanted to snap back at this reader that I’m not running the Encyclopedia Britannica here. . .

But in a remarkable coincidence – and luckily before I had a chance to snap – on that very day, another reader named Aletha happened to share with me her own amazing story as an adult living with a heart condition she’d had since birth. That weekend, I ran my first ever blog post about this cardiac condition, called “When babies with congenital heart defects grow up“. 

And recently, a similar reader contact reminded me that I’ve never covered the topic of cardiac pacemakers – until now. Continue reading “Hello pacers! A little Q&A about your pacemaker” →

What heart patients want ICD makers to know

~ Carolyn Thomas ~ 48 Comments

by Carolyn Thomas  ♥ @HeartSisters

dont-forget-about-me-4225379_1280 One of my Mayo Clinic heart sisters was recently invited to speak at a Patient Advocates Forum during the annual AdvaMed conference in Washington, DC – billed as “the premiere annual conference of the medical technology industry”.  This industry includes companies that manufacture cardiac devices like pacemakers and ICDs (Implantable Cardioverter Defibrillators).

So she did what all of us lucky ‘Mayo grads’ are easily able to do: she contacted other graduates of the annual WomenHeart Science and Leadership Symposium for Women With Heart Disease at Mayo Clinic. What, she asked us, would patients want her to say to these 1,000+ delegates from device companies (and the physicians who care for heart patients) attending this conference? She wanted other patient perspectives on what it’s like living with a metal device implanted inside your chest, what they worried about, and what could be done better. Here is a sampling of the responses – so listen up, titans of the medical device industry and all those who implant these devices into our bodies:   Continue reading “What heart patients want ICD makers to know” →

Do you know the difference between a pacemaker and an implantable defibrillator?

~ Carolyn Thomas ~ 19 Comments

by Carolyn Thomas  ♥  @HeartSisters

Before surviving a heart attack, I knew virtually nothing about pacemakers (they were just something that old people have to get, right?) and absolutely nothing about the cardiac device called implantable cardioverter defibrillators, or ICDs. 

In fact, the first time I laid eyes on a person with an ICD was at my 7-week Heart To Heart cardiac support group after I was discharged from hospital. 

One of the people in my group was a lovely, athletic 24-year old woman who had been diagnosed with a rare and serious heart arrhythmia called Long QT Syndrome.* Her sister had recently died suddenly due to the same condition.

Continue reading “Do you know the difference between a pacemaker and an implantable defibrillator?” →