by Carolyn Thomas    ♥   @HeartSisters

It’s fashionable these days for medical conference organizers, journal editors and researchers to boast about how “patient-focused” they are whenever they seek perspectives shared by patients with lived experience. But does boasting make it so?

Some of this patient focus has seemed a bit tepid to me. It’s as if they’re saying they want the patient voice – sort of, maybe, but not really. Here’s what I mean by that:  Continue reading “#PatientsIncluded “Lite”: sort of, maybe, but not really” →