Diagnostic uncertainty: when we just don’t know

by Carolyn Thomas      @HeartSisters

The image above is all about uncertainty. It’s like a 5-step roadmap that you’d use when traveling an unfamiliar road to a new destination you know nothing about and do not want to visit.(1)  For people experiencing scary symptoms they fear might be heart-related, for example, uncertainty about what’s happening now and what will happen next is pervasive. But a new study published in the journal Patient Education and Counseling reminds us that patients aren’t the only ones facing uncertainty around a medical diagnosis: “Both patients and clinicians experience diagnostic uncertainty, but in different ways.”(2)        .        .   Continue reading “Diagnostic uncertainty: when we just don’t know”

Discordance: when patients and docs aren’t on the same page

by Carolyn Thomas     @HeartSisters

In her Netflix comedy special, “Not Normal”, Wanda Sykes recalls  having severe post-operative pain following the double mastectomy she underwent after her breast cancer diagnosis. She asked hospital staff for pain medication, but was offered only ibuprofen (or, as Wanda now describes it, “ibu-f***ing-profen!”)  Her white male friends, by comparison, told her that they’d each been given far more effective meds for far less severe pain after their own hospital procedures.

Her recommendation to women now is: “Bring a white man to do your complaining for you! ”   That’s pretty funny. But we all know that the reality is not funny at all.              .        .
Continue reading “Discordance: when patients and docs aren’t on the same page”

“The doctors want my symptoms but not my stories”

by Carolyn Thomas     @HeartSisters

Marilyn Gardner, in her 2014 book called “Between Worlds: Essays on Culture and Belonging“) wrote about a compelling conversation she once had:

Yet our physicians aren’t trained to embrace our stories, but instead to ask right away, “What brings you here today?” to kick-start a brief Q&A that can most efficiently solve the diagnostic mystery sitting across from them.      .     .    Continue reading ““The doctors want my symptoms but not my stories””

Four ways we use online info to make healthcare decisions

by Carolyn Thomas     @HeartSisters 

Remember that unfortunate Don’t Google It! campaign a few years back in which the Belgian government sought to warn patients against seeking health info online? Three of the (many) assumptions in that offensive campaign included:

  • patients are stupid
  • patients are not already online seeking input on all kinds of daily questions, big and small
  • all patients behave the same way (e.g. like hysterical hypochondriacs)

Too bad the creators of this campaign weren’t familiar with the results of an interesting study that challenged those assumptions.      .  Continue reading “Four ways we use online info to make healthcare decisions”