I’d never heard of the heart condition called Spontaneous Coronary Artery Dissection (SCAD) until I attended the WomenHeart Science & Leadership patient advocacy training at Mayo Clinic in 2008. SCAD, I learned back then, was a rare and often fatal condition, seen mostly in young, healthy women who have few if any cardiac risk factors. But in a recent interview, cardiologists who specialize in this frequently misunderstood diagnosis added some surprising updates to what is now known about SCAD. . . Continue reading “How I used to describe SCAD. And what I’ve learned since.”
When my heart sister Katherine Leon was featured in The New York Times earlier this year, I was thrilled. Katherine, like me, is a graduate of the WomenHeart Science & Leadership patient advocacy training at Mayo Clinic. She told the Times of undergoing emergency coronary bypass surgery at age 38, several days after her textbook cardiac symptoms had first been dismissed by doctors who told her, “There’s nothing wrong with you.” .
Continue reading ““There is no gender bias in medicine. Because I said so…””
What you’re looking at is called a graphic recording. It’s live visual notetaking of one presentation – drawn by Vancouver illustrator Sam Bradd. As Sam explains, this kind of on-the-spot graphic recording “helps people remember and care about ideas. It supports interaction, reflection, and seeing the next steps.” When I spoke recently at the public panel discussion event called Your Heart, Your Health hosted by Vancouver Coastal Health Research Institute, Sam started the evening up near the stage with a blank page about 4’x8′ wide. By the end of the evening, we had what you see here!
Afterwards, I loved being described by event organizers as a “knowledge translator“ along with Sam for our roles both during this presentation on women’s heart health as well as in the ongoing work we do with patients. Continue reading “Your Heart, Your Health: two hours in one fantastic picture”