Dear Carolyn: “People can change for the better”

by Carolyn Thomas    @HeartSisters    October 28, 2018

We know now that childhood trauma is strongly associated with chronic illness later on, including heart disease. As I wrote in a recent blog post about ACE (Adverse Childhood Experiences), researchers warn us that scoring 4 or higher on the ACE test can predict a significantly higher risk of physical or mental illness as an adult. I was stunned when I took the test and saw that my own score was 4; I was well aware of my childhood experiences, of course, but I thought that only marginalized kids from desperately poor families were at high risk – and that wasn’t me! A history of psychological childhood abuse or neglect is not what we expect our doctors to ask us about – but this research suggests that maybe they should start.

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One response to that post really hit home for me. Marie (who prefers not to use her real name here) lives with a type of ischemic heart disease called coronary microvascular disease (as I do, too). With her kind permission, I’m sharing her childhood story with you as the latest guest post in my regular but very occasional series called Dear Carolyn“:

Oh, great. Another cardiac risk factor to worry about…

by Carolyn Thomas    @HeartSisters    October 7, 2018

There are lots of cardiac risk factors that increase our chances of developing heart disease one day. Some are beyond our control (like having a family history) and many are not (like smoking or a sedentary lifestyle).

Some other risk factors are less familiar, so are often overlooked. Until two years after my heart attack, for example, I didn’t know that having pregnancy complications (like the preeclampsia I was diagnosed with while pregnant with my first baby) can mean women are 2-3 times more likely to be diagnosed with heart disease years later. But here’s a cardiac risk factor that was new to me until I learned about something called the ACE study. And this is a big one. Continue reading “Oh, great. Another cardiac risk factor to worry about…”

Kindness in health care: missing in action?

by Carolyn Thomas    @HeartSisters 

I don’t remember much of what happened during that fateful visit to the Emergency Department.  I remember the on-call cardiologist saying something to me about my “significant heart disease”. After hearing those words, I felt so stunned that – although I could see his lips moving and could hear sounds coming out of his mouth – he may as well have been speaking Swahili.  (Doctors, please remember this in the future when delivering life-altering diagnoses to your patients!)

What I do vividly remember, however, is a small but profound act of kindness later that day when I was brought to my bed in the CCU (the cardiac intensive care unit). Continue reading “Kindness in health care: missing in action?”

“You’ve done the right thing by coming here today”

by Carolyn Thomas  ♥  @HeartSisters

One of the most upsetting things about being misdiagnosed with acid reflux in mid-heart attack was the sense of pervasive humiliation I felt as I was sent home from the Emergency Department that morning. I had just wasted the very valuable time of very busy doctors and nurses working in emergency medicine. I left the hospital feeling apologetic and embarrassed because I had made a big fuss over NOTHING.

And such embarrassment also made me second-guess my own ability to assess when it’s even worth seeking medical help. Worse, feeling embarrassed kept me from returning to Emergency when I continued to be stricken with identical symptoms: central chest pain, nausea, sweating and pain down my left arm. But hey! At least I knew it wasn’t my heart, right?

I now ask those in my women’s heart health presentation audiences to imagine what I would have done had my textbook cardiac symptoms been happening to my daughter Larissa instead of to me. General audience opinion is that I, like most Mums, would have likely been screaming blue murder, insisting on appropriate and timely care for my child. But as U.K. physician Dr. Jonathon Tomlinson pointed out recently, even parents can feel insecure about their own ability to know what is a real medical emergency – and what is not – when it comes to their children. For example:     Continue reading ““You’ve done the right thing by coming here today””