Tag Archives: Dr. Kathy Charmaz

Oscillating narrative: the learned art of re-creating ourselves

17 Dec

by Carolyn Thomas    @HeartSisters

“We all re-create ourselves; it’s just that some of us use more imagination than others.”  ~ Madonna

Whether we want to or not, we often end up re-creating ourselves after a significant medical diagnosis. Researcher Dr. Kathy Charmaz calls this phenomenon the loss of self after such a diagnosis, a loss experienced while we’re learning to adapt and adjust to this strange new life as a patient. When we try to talk about this painful loss to others who haven’t ever experienced it, most have trouble taking us seriously, or they may want to jolly us out of our current reality.

Yet how we talk about this matters to how we get through it. Continue reading

Two big factors that can impact a patient’s loss of ‘self’

8 Jan

by Carolyn Thomas    @HeartSisters

When California sociologist Dr. Kathy Charmaz studied the subject of suffering among those living with chronic illness, she identified an element of suffering that is often overlooked by health care providers.(1)  As she explained her findings:

“A fundamental form of that suffering is the loss of self in chronically ill persons who observe their former self-images crumbling away without the simultaneous development of equally valued new ones.

“The experiences and meanings upon which these ill persons had built former positive self-images are no longer available to them.”

Dr. Charmaz also found that this profound sense of having lost the “self” you used to be before being diagnosed is generally the result of both external and internal influences on how we view ourselves.  Continue reading

The loss of ‘self’ in chronic illness is what really hurts

2 Aug

by Carolyn Thomas    @HeartSisters

People living with chronic illness already know that the triple whammy of ongoing physical symptoms, psychological distress and the discomfort of medical procedures can cause us to suffer. But when California sociologist Dr. Kathy Charmaz studied chronic illness, she identified an element of suffering that is often dismissed by health care providers.(1)

As she explained in research published in the journal Sociology of Health & Illness, a narrow medicalized view of suffering that’s defined as physical symptoms only ignores or minimizes the broader significance of suffering in a way that may resonate with you if you too live with a chronic illness like heart disease: Continue reading