Tag: Dr. Stephen Parker

Drawing a picture of your diagnosis

~ Carolyn Thomas ~ 17 Comments

 

                  .    Part of my latest mandala (a work in progress)

by Carolyn Thomas  ♥  @HeartSisters 

The late Madeleine Shields was a gifted artist and teacher here on the west coast of Canada. But more importantly to me, she was MY teacher. Her artistic expression of choice was the mandala, a Sanskrit word for “circle”. The mandala practice of Madeleine Shields was not what you might see in adult colouring books or on painted rocks at craft fairs. Hers was based on an ancient spiritual and meditative practice that she compared to “painting a mirror”. I can sometimes still hear her distinctive voice in my ear asking pointedly, “Did you do it well, or did you do it fast?”

A recent study supports what Madeleine had already figured out 20 years before her death:  art can intuitively reflect our deepest emotions in a surprisingly accurate fashion – and that’s especially true when we become patients. Continue reading “Drawing a picture of your diagnosis” →

Some book excerpts to tease you…

~ Carolyn Thomas ~ 12 Comments

 

by Carolyn Thomas  ♥ @HeartSisters 

It’s been quite the ride since my book was published by Johns Hopkins University Press in 2017! When it was launched, “A Woman’s Guide to Living with Heart Disease” became Amazon’s #1 New Release in the Medicine/Public Health category. The book is now in its second printing, and reviews have been truly wonderful – with one notable exception: an Australian reader named Robert who complained in his review that there was “a bit too much emphasis on how women are neglected when it comes to heart disease” – and then added: “Happily for me, my doctors, nurses and physios did everything by the book.”

Thank you Robert, for helping to illustrate the cardiology gender gap so perfectly!

Here are some random excerpts from my book, gathered from each of the 10 chapters.
Continue reading “Some book excerpts to tease you…” →

When are cardiologists going to start talking about depression?

~ Carolyn Thomas ~ 44 Comments

by Carolyn Thomas    ♥   @HeartSisters

I can vividly remember those early days and weeks at home after surviving a heart attack, especially that cold creeping anxiety around how I “should” be feeling. I had just survived what many do not: what doctors still call the “widow maker“ heart attack. (By the way, note the gender semantics there, please: doctors are not, after all, calling this the “widower maker”).

I was now resting comfortably, both of my darling kidlets had flown back home to be with their Mum, our home was filled with flowers, get-well cards and casseroles delivered by the daily line-up of concerned friends, family, neighbours and co-workers.

So why was I feeling so bleak inside, and even worse, now feeling guilty for all that bleakness?  Continue reading “When are cardiologists going to start talking about depression?” →

Pain vs. suffering: why they’re not the same for patients

~ Carolyn Thomas ~ 41 Comments

by Carolyn Thomas    ♥   @HeartSisters

dont-forget-about-me-4225379_1280I’ve written a lot (here, here, and here, for example) about cardiac pain, because I live with cardiac pain called refractory angina due to a pesky post-heart attack diagnosis of coronary microvascular disease. This pain varies, but it hits almost every day, sometimes several episodes per day, and it can feel very much like the symptoms I experienced while busy surviving what doctors call the widow maker heart attack in 2008.

But there’s pain, and then there’s suffering. The two are not the same.

I spent many years working in the field of hospice palliative care, where we all learned the legendary Dame Cicely Saunders‘ definition of what she called “total pain”.(1)  This is the suffering that encompasses ALL of a person’s physical, psychological, social, spiritual, and practical struggles. Although addressing total pain is an accepted component of providing good end-of-life care for the dying, the concept seems to be often ignored in cardiac care for the living. Continue reading “Pain vs. suffering: why they’re not the same for patients” →