by Carolyn Thomas ♥ @HeartSisters ♥ July 22, 2018
When his 6-year old son became very ill and was hospitalized, Dan Beckham observed how his own behaviour in the hospital began to dramatically change compared to his real life. Although he would readily send a restaurant meal back if it weren’t properly cooked, now when his son received poor care (e.g. a healthcare professional who did not wash his hands), Dan hesitated to be assertive “for fear of alienating the physicians and nurses whose goodwill he needed to maintain.” Here’s how he explained this:
“I felt dependent and powerless, as if my son was a hostage to the care he received and the system that delivered it. It was as though I was compelled to negotiate for his safe release from potential harm.”
Such a reaction is an example of what’s known as Hostage Bargaining Syndrome (HBS), as described in the medical journal Mayo Clinic Proceedings.(1) Continue reading “When patients feel like hostages”
by Carolyn Thomas ♥ @HeartSisters
I’m very sad to report that Erin Gilmer died on July 8, 2021. Rest in peace, Erin.
I asked permission to republish this letter written by patient advocate and health policy attorney Erin Gilmer, who has lived in poverty brought about by debilitating chronic illnesses.
Erin offers a unique patient perspective in this letter to the organizers of the annual Medicine X conference at Stanford University. After writing her letter, she was subsequently invited to speak at Medicine X 2014. Although not well enough to travel to California in person after recovering from spinal surgery, she was thrilled when Medicine X organizers offered to put together an edited recording of her presentation to be shown to both live and online audiences on September 5th, 2014. You can watch it here.
“Dear Medicine X Conference organizers,
“Your upcoming healthcare conference forum on under-served populations brings up a concern for me that I hope you will consider in the next few months. The best way I can explain my concern is through this example: Continue reading “Erin Gilmer: “Us” vs “them”: the under-served patient speaks up”