Online patient groups: why so under-used?

by Carolyn Thomas @HeartSisters    2nd in a 3-part series:

This may come as a shock to health care professionals, particularly to the ones who cringe when their patients bring in health information they found via Dr. Google. But it turns out that the accuracy of information found on online patient support groups is actually surprisingly reliable. For example, the British Medical Journal reported that most false or misleading statements in online patient groups are in fact rapidly corrected by other participants in subsequent postings. And there aren’t many of these false or misleading statements. The journal published an interesting study that found only 10 of 4,600 online patient group postings studied (that’s just 0.22%) were actually found to be false or misleading. But of these, seven were identified as such by other site participants and corrected within an average of four hours and 33 minutes.(1)

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“Seeking Social Solace”: why aren’t heart patients online?

by Carolyn Thomas  @HeartSisters

See that microscopically tiny little purple sliver near the top of the pie chart? That’s heart disease – and the sliver represents how many heart patients are going online to engage with others about our shared diagnosis. As you can see, we make up barely 2% of all diagnoses discussed by patients on social media, the second smallest slice of this very big tasty pie.  You might wonder why that is given that, compared to every other disease included in this study’s findings, heart disease is our biggest killer. Continue reading ““Seeking Social Solace”: why aren’t heart patients online?”