Tag: SCAD Alliance

How I used to describe SCAD. And what I’ve learned since.

~ Carolyn Thomas ~ 9 Comments

by Carolyn Thomas  ♥  @HeartSisters

I’d never heard of the heart condition called Spontaneous Coronary Artery Dissection (SCAD) until I attended the WomenHeart Science & Leadership patient advocacy training at Mayo Clinic in 2008.  SCAD, I learned back then, was a rare and often fatal condition, seen mostly in young, healthy women who have few if any cardiac risk factors. But in a recent interview, cardiologists who specialize in this frequently misunderstood diagnosis added some surprising updates to what is now known about SCAD.     .        . Continue reading “How I used to describe SCAD. And what I’ve learned since.” →

Is SCAD rare? Or just rarely diagnosed correctly?

~ Carolyn Thomas ~ 14 Comments

by Carolyn Thomas  ♥  @HeartSisters  

I was happy to see Katherine Leon featured in The New York Times recently. Katherine, like me, is a graduate of the WomenHeart Science & Leadership patient advocacy training at Mayo Clinic. She told the Times of undergoing emergency coronary bypass surgery at age 38, several days after her severe cardiac symptoms had been dismissed by doctors who told her, “There’s nothing wrong with you.”

She isn’t alone. Many, many studies have shown that female heart patients are significantly more likely to be under-diagnosed – and worse, often under-treated even when appropriately diagnosed – compared to our male counterparts. This is especially true for women with her condition (Spontaneous Coronary Artery Dissection, or SCAD) that was once considered to be a rare disease.

Dr. Sharonne Hayes is also featured in the NYT piece; she’s a respected Mayo Clinic cardiologist, longtime SCAD researcher and founder of the Mayo Women’s Heart Clinic. (You can read their story here).

But almost as soon as the Times piece was published online, I was gobsmacked to see some of the reader comments coming in – especially comments from people like these:     . Continue reading “Is SCAD rare? Or just rarely diagnosed correctly?” →