This week: a terrific guest post by Linda Johns, librarian at Seattle Public Library by day and writer of children’s books (including the Hannah West mystery series) before and after work. Originally published on June 4, 2016 on Linda’s self-titled blog.
Can you tell which author in this group photo* taken at a Seattle book event was experiencing heart attack symptoms while this photo was being taken? Me neither. Read on to solve the mystery as told by Linda Johns – which reminds us that heart disease can strike any of us at any time, an equal-opportunity medical crisis.
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“Three months ago I had a heart attack. And since the symptoms of a heart attack are different for women, and since the kind I had can strike people with no markers of heart disease, I’ve decided to tell my story. And because I love to name drop, I’ll do some of that along the way because I was with authors I love that night.
“I was at Queen Anne Book Company in Seattle, surrounded by friends. Authors Kirby Larson, Kristen Kittscher and I had just finished a presentation on our middle grade mysteries when in a flash everything changed for me. I had full-on flu-like symptoms, unlike anything I’d ever experienced before. I whispered to Kirby that I didn’t feel well and needed to leave; she took one look at me and tried to intervene, asking to take me home or to urgent care. Something was off. She told me she was worried, and that I looked ‘ashen’. (That specific word comes into play later.) I assured her I’d be fine. My friend Sara Nickerson looked concerned and touched her chest, a movement that triggered something in my brain.
“As I headed to my car, a pressure came into my chest. Weird, but not too bad. I thought about what Kirby had said, how Sara had touched her heart. I tried to stop the crazy thoughts in my head that maybe I was heading toward a heart attack. I thought about going back to the store, knowing that anyone in there would help me. My dear friend Jane (friends since college) had just left the bookstore and lives nearby. I knew I didn’t have to be alone. But I decided to drive home anyway.
“A few minutes into the drive, stabbing pain in my back came and I knew precisely what it was (thank you PBS documentary on women and heart disease!). Still, because I’m a dummy, I drove all the way home, threw up and then the pain went down my left arm to my little finger.
“I walked inside and asked Kevin, my husband, to take me to the ER. He asked no questions, just jumped up and grabbed his keys. I remember saying something like I might be embarrassed if it was nothing, but that I’d rather be embarrassed than dead. He just said: ‘We’re going.’
“My heart attack was not the Hollywood kind where someone (almost always a man) grabs his chest and doubles over in pain. Every one of my symptoms was one that would stand on its own as a possible heart attack; all of my symptoms are ones that could be, and often are, dismissed by healthcare professionals, let alone the people having them. When I walked into the ER, I listed them quickly and specifically. If you are a woman (or you know one), please take note of my heart attack symptoms:
- Stabbing back pain between my shoulder blades
- Pain radiating down my left arm to my little finger and ring finger
- Chest pain (this was the least of my symptoms)
- And, I said, ‘A friend said I looked ashen.’
“All were noted, the word “ASHEN” in all caps, and I was taken in immediately. It was confirmed that I was having a heart attack, or, as I now call it, a myocardial infarction (MI). Just a couple months after a physical where I’d had a normal ECG and full blood work, with cholesterol scores so good I could have framed them. I exercise, eat reasonably well, don’t smoke, I’m not THAT old, and I was having a heart attack.
“The heart attack (MI) was caused by a tear in an artery wall, which is called a spontaneous coronary artery dissection, or SCAD.
“SCADs occur predominantly in women who are fit and healthy, with an average age of 42. We don’t know why they happen, and I’m not sure there’s anything I could have done to prevent it from happening. The first articles I read kept referring to SCAD as a rare disease. The SCAD Research Alliance says this:
“I’ve met some wonderful women through a SCAD Survivors group and I’m thankful every day for them and the research now being done at the Mayo Clinic. SCAD survivors share information on how hard the first year is, the fear of recurrence (a real fear, as it happens frequently), anxiety, making progress in cardiac rehabilitation, and finding a “new normal.”
“I am incredibly grateful to my friend Kirby because her concern and her words got me to the point where I knew this was real. This was big. Ashen is an unusual color for me unless, as it turns out, my heart is not getting enough oxygen.
“Heaps of thanks to my family and to all my friends, and those who, when they asked what they could do, came when I said the dog really could use a walk, or two, every day for a few weeks. Thank you.”
“My friend Jane took this photo just minutes before my heart attack. I still feel like the person here, although my new normal is definitely different.”
* Linda is having a heart attack in the group photo (top). She’s third from the left, seated. “But look at who I’m surrounded by”, she adds. “Friends and writers I love. Kristen Kittscher, Kirby Larson, Suzanne Selfors, Sara Nickerson, Jennifer Longo. I love these women!”
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© 2016 Linda Johns
NOTE FROM CAROLYN: I wrote much more about women’s heart attack symptoms in my book, “A Woman’s Guide to Living with Heart Disease” (Johns Hopkins University, November 2017).
Q: Have you ever smiled at the camera despite feeling seriously ill?
Here’s a shot of my own smiling face between my late mother Joan and daughter Larissa the day before I was hospitalized with a heart attack in 2008.
- When your artery tears – Spontaneous Coronary Artery Dissection
- How does it really feel to have a heart attack? Women survivors answer that question
- Be your own hero during a heart attack
- All the SCAD ladies, put your hands up!” (The Wall Street Journal’s feature on Laura and Katherine Leon‘s success in convincing Mayo Clinic cardiologists to undertake SCAD researchRead
- SCAD Ladies Stand Up: Stories of Patient Empowerment, the special report from Inspire.com and the WomenHeart support community. It features a number of interesting first-person accounts from SCAD survivors.
- So, I had a heart attack … – Linda’s original blog post