I’d never heard of the heart condition called Spontaneous Coronary Artery Dissection (SCAD) until I attended the WomenHeart Science & Leadership patient advocacy training at Mayo Clinic in 2008. SCAD, I learned back then, was a rare and often fatal condition, seen mostly in young, healthy women who have few if any cardiac risk factors. But in a recent interview, cardiologists who specialize in this frequently misunderstood diagnosis added some surprising updates to what is now known about SCAD. . . Continue reading “How I used to describe SCAD. And what I’ve learned since.”
When my heart sister Katherine Leon was featured in The New York Times earlier this year, I was thrilled. Katherine, like me, is a graduate of the WomenHeart Science & Leadership patient advocacy training at Mayo Clinic. She told the Times of undergoing emergency coronary bypass surgery at age 38, several days after her textbook cardiac symptoms had first been dismissed by doctors who told her, “There’s nothing wrong with you.” .
Continue reading ““There is no gender bias in medicine. Because I said so…””
I was happy to see Katherine Leon featured in The New York Times recently. Katherine, like me, is a graduate of the WomenHeart Science & Leadership patient advocacy training at Mayo Clinic. She told the Times of undergoing emergency coronary bypass surgery at age 38, several days after her severe cardiac symptoms had been dismissed by doctors who told her, “There’s nothing wrong with you.”
She isn’t alone. Many, many studies have shown that female heart patients are significantly more likely to be under-diagnosed – and worse, often under-treated even when appropriately diagnosed – compared to our male counterparts. This is especially true for women with her condition (Spontaneous Coronary Artery Dissection, or SCAD) that was once considered to be a rare disease.
Dr. Sharonne Hayes is also featured in the NYT piece; she’s a respected Mayo Clinic cardiologist, longtime SCAD researcher and founder of the Mayo Women’s Heart Clinic. (You can read their story here).
But almost as soon as the Times piece was published online, I was gobsmacked to see some of the reader comments coming in – especially comments from people like these: . Continue reading “Is SCAD rare? Or just rarely diagnosed correctly?”
As a person who lives with and writes about coronary microvascular disease (MVD), I feel lucky that my family doctor, my cardiologist and my pain specialist are all believers. It’s like the trifecta of diagnostic wins for a heart patient! I say that because one of my blog readers, after asking her physician if her puzzling cardiac symptoms might be due to MVD, was told:
“I don’t believe in coronary microvascular disease.”
I guess it’s time to remind such physicians that we’re not talking about Santa Claus or the Tooth Fairy here. Continue reading “My medical diagnosis means more to me than to you”
This week: a terrific guest post by Linda Johns, librarian at Seattle Public Library by day and writer of children’s books (including the Hannah West mystery series) before and after work. Originally published on June 4, 2016 on Linda’s self-titled blog.
Can you tell which author in this group photo* taken at a Seattle book event was experiencing heart attack symptoms while this photo was being taken? Me neither. Read on to solve the mystery as told by Linda Johns – which reminds us that heart disease can strike any of us at any time, an equal-opportunity medical crisis.
Today, I’m happy to share with you the story of an unusual milestone in life that you may not be familiar with unless you, too, are a heart patient: it’s the Heart-iversary celebration that marks another year since the day you survived a cardiac event.
My own Heart-iversary is coming up on May 6th, but just recently Laura Haywood-Cory wrote about celebrating the seven year milestone since she survived a heart attack caused by a Spontaneous Coronary Artery Dissection (SCAD). With Laura’s permission, I’m running her reflections here on this celebration: Continue reading “Be your own hero during a heart attack”