Happy 15th Heart-iversary to me. . .♥

by Carolyn Thomas  ♥  @HeartSisters 

I can still vividly recall the hospital volunteer I met while in the CCU (the Intensive Care Unit for heart patients). She told me that several years earlier, she too had survived a heart attack like mine: what doctors call the widow maker” heart attack. That’s an ironically male-centric name for a heart attack so severe that it could transform a (male) patient’s wife into a widow. But what really struck me about this volunteer was that she was walking, talking, and most surprisingly – looking completely “normal” – at a time when I doubted I’d ever feel “normal” again.

Yesterday, May 6th marked 15 years since the day I met that woman in the CCU. On that sunny spring day back in 2008, while recuperating from a misdiagnosed heart attack, I not only doubted my capacity for normalcy, but I certainly didn’t believe I would live long enough to celebrate a 15th Heart-iversary. Continue reading “Happy 15th Heart-iversary to me. . .♥”

The 5 stages of “What the hell just happened to me?”

by Carolyn Thomas   ♥  @HeartSisters

Kathy Kastan’s terrific bookFrom the Heart” was hot off the press when I survived a misdiagnosed heart attack in 2008. Hers was the first book I found that focused specifically on women and heart disease. Here’s how her own story was described on the book’s cover:

“After undergoing emergency coronary bypass surgery at age 42, Kathy Kastan found her world shifting in unexpected ways. Everything – her sense of well-being, relationships, daily routine, even her body image – seemed to change. Doctors helped her recover physically, but she had to find new methods to recover emotionally and create a happy, healthy life.”  

While I read this back then, my own world was crazily shifting, too. Continue reading “The 5 stages of “What the hell just happened to me?””

You’re not always going to feel this way

by Carolyn Thomas   ♥   @HeartSisters

While binge-watching Season 4 of Grace and Frankie on Netflix the other day, I heard Frankie’s sweetheart, Jacob the Yam Man, trying to calm her down with a statement that has proven to be very true for me since my heart attack:

“You’re not always going to feel the way you do today!”

I think I’ll go embroider that on a pillow. . .            Continue reading “You’re not always going to feel this way”

When we expect to die, but don’t

by Carolyn Thomas      @HeartSisters

Shortly after I was freshly diagnosed with coronary microvascular disease (MVD), one of my readers told me that, for the past 12 years, she too had been living with MVD after surviving her own “widow maker heart attack”, just as I had.  Immediately picturing the future prospect of somehow coping with ongoing bouts of exhaustion, shortness of breath and debilitating chest pain, my surprising gut reaction was:

“12 years!?  TWELVE YEARS?!?!?!  I can’t do this!”

Well, Happy Heart-iversary to me: on May 6th this week, exactly 13 years have passed since my initially misdiagnosed heart attack was finally correctly diagnosed and appropriately treated, but even more amazing to me, I’ve now lived with MVD for 12 of those 13 years.     .      .     Continue reading “When we expect to die, but don’t”

The “new normal” – and why patients hate it

by Carolyn Thomas      @HeartSisters

The “new normal”.  It’s what the freshly-diagnosed heart patient is supposed to get used to now. The implication seems clear:  Forget about your old life and the person you once were.”  Many of us fight that “new normal” label, but there might be another way to look at this.   . Continue reading “The “new normal” – and why patients hate it”