Why patients hate the C-word

by Carolyn Thomas     @HeartSisters

Way back in 1847, the American Medical Association panel on ethics decreed that “the patient should obey the physician.” 

There may very well be physicians today – in the era of empowered patients and patient-centred care and those darned Medical Googlers – who glance nostalgically backwards at those good old days.

Let’s consider, for example, the simple clinical interaction of prescribing medication.  If you reliably take the daily meds that your doctor has prescribed for your high blood pressure, you’ll feel fine.  But if you stop taking your medication, you’ll still feel fine.  At least, until you suffer a stroke or heart attack or any number of consequences that have been linked to untreated hypertension.

Those who do obediently take their meds are what doctors call “compliant”.  And, oh. Have I mentioned how much many patients like me hate that word? 

Continue reading “Why patients hate the C-word”

How Minimally Disruptive Medicine is happily disrupting health care

by Carolyn Thomas    @HeartSisters

I’ve been on an adventure recently to a magical, faraway place. It was my second visit to the world-famous Mayo Clinic in beautiful downtown Rochester, Minnesota. My first trip there was exactly seven years ago as a freshly-diagnosed heart attack survivor. I had applied (and was accepted) to attend the annual WomenHeart Science and Leadership Symposium for Women With Heart Disease at Mayo Clinic – the first Canadian ever invited to attend. This is a training program that arms its graduates with the knowledge, skills and (most of all) Mayo’s street cred to help us become community educators when we go back to our hometowns.

Thus, a circle that began with me sitting in a 2008 training audience was completed as I became one of the presenters onstage in front of an audience of cardiologists at a Mayo medical conference on women’s heart disease. (Thank you Drs. Hayes, Mulvagh and Gulati for your persistent invitations!)  But long before I took the stage last weekend, I’d been invited to come to Rochester a day earlier to meet with some pretty amazing Mayo staff. Continue reading “How Minimally Disruptive Medicine is happily disrupting health care”

No, really – patient education that’s actually useful!

by Carolyn Thomas  ♥  @HeartSisters

I think I’ve seen just about every “healthy lifestyle” informational brochure out there. You’ve seen them, too:  Eat better! Lose Weight! Quit Smoking! Get More Exercise! BlahBlahBlah!  None that I’ve found so far, however, mention anything that we don’t already know. Behaviour change is notoriously challenging – otherwise we’d all be doing it already.  It seems to me that the issue is not so much about raising awareness of something that isn’t well understood (Really? Smoking is bad for us?) but more about presenting information in a way that seeks to somehow meaningfully interact with the reader.

In my eternal quest for good solid take-home resources to hand out to the audiences at my women’s heart health presentations, I happened upon one – at last! – that caught my eye.  It’s called Living Well, simply sub-titled “tips for health and happiness”.
Continue reading “No, really – patient education that’s actually useful!”

Kindness in health care: missing in action?

by Carolyn Thomas    @HeartSisters 

I don’t remember much of what happened during that fateful visit to the Emergency Department.  I remember the on-call cardiologist saying something to me about my “significant heart disease”. After hearing those words, I felt so stunned that – although I could see his lips moving and could hear sounds coming out of his mouth – he may as well have been speaking Swahili.  (Doctors, please remember this in the future when delivering life-altering diagnoses to your patients!)

What I do vividly remember, however, is a small but profound act of kindness later that day when I was brought to my bed in the CCU (the cardiac intensive care unit). Continue reading “Kindness in health care: missing in action?”

Do you fear change? Then don’t have a heart attack

by Carolyn Thomas   @HeartSisters

For the freshly-diagnosed heart patient, the immediate and sudden change from “being well” to “recovering” cuts directly to the core of self-concept and self-esteem, according to Dr. Wayne Sotile. He offers a surprisingly familiar list of seven sudden changes commonly observed after a cardiac event. When thinking back on the new reality of my own early post-heart attack days, I was able to tick off his list, point by point. If this had been a midterm exam, in fact, I’d score a perfect 7/7.  On his list of seven stressors that newbies often face, how many ring true for you, too? Continue reading “Do you fear change? Then don’t have a heart attack”